JacksonvilleFl Mayo Clinic Ex.Stay prayers PLS

Name: JacksonvilleFl Mayo Clinic Ex.Stay prayers PLS
Brand: Dysautonomia Awareness
SKU: 512c2294abe75c1fb5004bf6
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Dysautonomia Awareness

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My daughter had a feeding tube put in called a Gtube. She has an upside down stomach & Dysautonomia where the brain makes adrenaline 24/7. I am updating this because I want all to know I have a lot of items to be listed soon as she's well enough to not need my round the clock care. She has been readmitted once & to the er several times, more test coming up due to constant itching, swollen lymph nodes. THANKS FOR THE GIFTS, We are selling $10 raffle tickets for a COACH PURSE CONTACT ME 4 info

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fatlucy and 31 others like this

188 Comments

ibblesd Hey Haley is having difficulty with her blood pressure it is to low she almost died the other day I just wanted you to know I will be getting my mother to ship packages late this evening thank you and God bless and thanks for all the prayers

Feb 27Reply

gettumgirl God is Great all the time!!!...I was jolted out of my sleep at about 1:35 this morning ..I go on Posh..and your post brought tears to my eyes..and The Lord spine to my heart to pray...so I have..I plead the blood of Jesus over your families life for all you have been through...but I also know God makes no mistakes and you can rest assure of that!....you pray and let God work his miracle over your life....I love you guys!!!...and I will continue to pray for you...:)

Feb 28Reply

gettumgirl @alu0515 ....

Feb 28Reply

gettumgirl @katiegocandy.......

Feb 28Reply

gettumgirl @malmac98......

Feb 28Reply

gettumgirl @rose515....

Feb 28Reply

katiegocandy Hope she will get well soon.

Feb 28Reply

rose515 @ibblesd Halley is always in my prayer. Give my love to her. Praying for her quick recovery 😘😘🌹

Feb 28Reply

rose515 @gettumgirl thanks for the tag. I'm under the weather 😞

Feb 28Reply

ibblesd @gettumgirl thank you so much for all the tags @gettumgirl. You are such a sweet loving person!!!! My mom got the packages out for me and I will have tracking info late this evening. I appreciate all the prayers and emails, gifts etc. you will NEVER know how much IT MEANS TO ME.

Feb 28Reply

gettumgirl Honey...I'm not worrying about that!!!...I promise you I'm not!!!!...your baby health comes First!!!!!

Feb 28Reply

gettumgirl Hey Hun...how are your???...been thinking about you a lot!!!!...also received my clogs...they are Awesome to say the least!!!!...THANKYOU for all the gifts...:)...my daughter is wearing her bracelets right now!...inlet her know it was from you and your daughter ...again so appreciate everything...:)

Mar 03Reply

ibblesd I am so thankful you guys lined the stuff. Makes me feel good. :) @gettumgirl

Mar 03Reply

gettumgirl Her Hun how's your daughter???

Mar 03Reply

ibblesd @gettumgirl she actually ate a little real food today! Yippee .... Still watching BP but it's staying steady above the threatening mark so we are blessed! Thank you so much for all the concern. I truly appreciate it and especially the prayers.

Mar 03Reply

gettumgirl Wow Hun!!!!....Thats Great!!!!!...Thank God!!...oh Allison says she has been emailing you...she's really concerned...:/

Mar 03Reply

stephsacarello Wow you are definitely a strong woman! I will be praying For your daughter and mke a prayer request for her At my church. Take care and I hope she gets better soon!!

Mar 04Reply

hurtado08 Awww 🙏prayers for u n ur lil angle hope she's recovering n is doing good😃😃my god bless u n ur family!!!!

Mar 04Reply

ibblesd @hurtado08 thank you so very much. She has a long road ahead but is doing better today. Last two days she actually nibbled on REAL food and blood pressure is stable. She has slept a lot but God is good! She's learning to take care of her tubing, how to disconnect and reconnect it for showers, etc. I truly appreciate the prayers.

Mar 05Reply

sparklemmelia Prayers being sent your way! Psalms 121 and 73:26

Mar 05Reply

ibblesd @sparklemmelia thank you very much! And thanks for the bible verses. :)

Mar 05Reply

gettumgirl @ibblesd ...hey Debbie...how's Haley???...today I will switch and ask that you pray for my daughter as we are in the hospital ..at 11..her heart rate is 147/28..have a IV going..just wanted to ask to drop a prayer for her..thank you..:)

Mar 10Reply

ibblesd @gettumgirl OMG GIRL??? Tell them to check her for Dysautonomia It's very rare If they can't find what it is tell them that. Haley is not doing good. Her bp just won't balance out It's 91/53 rt now. Girl that TOP # on your daughter is way too high &bottom WAY TOO LOW. Sounds line her heart is fighting to balance out that's what Haleys does I am praying big time

Mar 10Reply

ibblesd @gettumgirl girl PLEASE CALL ME IF YOU NEED TO TALK 256-590-6561

Mar 10Reply

gettumgirl Omy gosh!!!...oh Haley...we are praying for you....the doctors think that her acid reflux meds are fighting her other meds(concerta)...after hours of being here...it's finally going down..right now as we speak..132/25...they gave her more fluids by IV ...checked thyroid too..all was fine...getting ready to be discharged

Mar 10Reply

ibblesd @gettumgirl goes your baby doing?

Mar 11Reply

gettumgirl ...deb we are home...and better but not 100...her appointment is like 12 days to see the Pediatric GI specialist ...I will have her heart rate checked this week by her pediatric doctor...how's Haley?????

Mar 11Reply

adombek @ibblesd @gettumgirl Best of luck to both of you and your daughters! 😔🙏💕

Mar 11Reply

gettumgirl @adombek ..thank you so much Anne...:)

Mar 11Reply

ibblesd @adombek thank you & God Bless you a well. I'm slow to respond at times. Sorry for the delay. @gettumgirl how's your baby today? Also have you heard from @alu0515 ? I had to cancel the order for the true religion cuz I can't find them. Funny how things disappear after certain ppl have been to your house. I AM SO UPSET, but God has a plan & I will leave it at that. Everything happens for a reason.

Mar 11Reply

gettumgirl @ibblesd ..baby girl is better...how are you and Haley...have her numbers come up...have not heard from Allison ..I tagged her to some items but no response ..I know she said she was going on a vacation to Florida...not sure when though...

Mar 11Reply

rose515 @ibblesd & @gettumgirl hello ladies. Just checking how u are doing? I hope both ur daughters are doing better. Pray.Pray.Pray. I been suffering from migraine and been coughing for the past few days now and can't seem to get rid of it. Hang in their ladies. Big hugs to u both. ❤😘

Mar 12Reply

ibblesd @rose515 I appreciate you takin the time to drop us ( @gettumgirl ) a line. I am sorry it has taken me so long to respond. I am exhausted. But I want to let you know I am praying for you & so sorry you are still having headaches. (Migraines) I know those can really wear a person down. And the coughing makes it worse I am sure. Seems we all have a little something going on to keep us all busy. I've been worried because I haven't heard from @alu0515 . I sure hope she's ok!!! Well God Bless you all. I am going to catch a little nap while I have a few extra minutes. @mrsingleton714 haven't heard from you lately, hope you found a job & things have slowed down for you as well. Have a great week everyone & know you have some TRUE POSH FRIENDS WHO TRULY CARE.

Mar 13Reply

gettumgirl @ibblesd @rose515 ..hey guysz ..how are you??...my daughter is better...prayer changes things...Rose I hope you've been tested to make sure there are no underlining issues...I went to @alu0515 ..Allison closet and tried to see if there was any convo in the past week or so..and I found a customer who was upset that she sent Allison a shirt and I guess she never released the funds to the girl...so I looked further by tagging the girl..and what I found out was that Allison was in the hospital like two weeks ago?!..not sure why though..deb you know anything about that?..also I text her hot nothing back..so I called..phones disco....I don't like what I feel..I want my friend back...:(

Mar 13Reply

ibblesd @gettumgirl oh No! I hope @alu0515 is ok!!! I don't know why people get so upset, after 3 days PM releases the funds anyway. Besides, if someone gets something & wants to try it out for 3 days, or lets say they are on vacation, or even possible be in the hospital , some people are just plain rude and have NO HEART. It sad really. I am glad your daughter is better. As for mine, we are goin back for more test. She's havin a really hard time. Lymph nodes swelling under armpits, constant itching & still tries to keep a smile on her face.

Mar 14Reply

gettumgirl @ibblesd ..deb..@rose515 ..rose..hello my posh sissys...how are you guysz??...rose I hope that migraine is under control??...have you gone to a doctor??...making sure it's nothing causing those to be concerned about??...deb how's baby Haley doing???...how are those numbers balancing out for her...just wanted you guysz to know even 4:30..in the morning...you are on my mind.:::::))))))))....oh still have not heard from @alu0515 ...Allison...man I hope she's ok???

Mar 15Reply

rose515 @ibblesd @gettumgirl hello ladies. No more migraine and got rid of my constant coughing. But here comes my allergy...Sneezing n runny nose. So glad to hear that Borg ur daughters are doing well....thx u God! I need to catch up and I need to pack two orders. Catch up with u soon sisters!

Mar 16Reply

jenmercylago Proverbs 4:20-22 My child, be attentive to my words; incline your ear to my sayings. Do not let them escape from your sight; keep them within your heart. For they are life to those who find them, and healing to all their flesh.

Mar 16Reply

ibblesd @rose515 @jenmercylago thanks for the thoughts & prayers. Rose I am so glad you are feeling better. You sound like my Dad as far as the allergies. He moved here from Lakeport a few years back & his drive him nuts! @jenmercylago I love that verse! Thank You So much! Hope you have a blessed weekend

Mar 16Reply

gettumgirl @alu0515 ...girl I'm going to put you over my lap and spank that boot -taa!!....loll...soooo glad your ok...we missed you Allison..:))))

Mar 20Reply

katebunny76 Hope she will get well soon and get to go back home and have a good life

Mar 21Reply

ibblesd @alu0515 @gettumgirl @katebunny76 @rose515 hope all of you are doing well. I'm so sorry it's taken me so long to get back to ya. We are having more tests done tomorrow. The feeding tube is working well and she's gaining weight! Whoop whoop! It's the itching & not being able to sleep that's bothering her now. With Dysautonomia it's always a roller coaster ride the doctors say. They are talking about sending us to Tennessee or MN to the Mayo Clinic if things don't get better. They do a complete body & bone scan, test every organ and go from there. It's her central nervous system that's messed up. I haven't even checked my email lately so if any Of you have written me I am sorry I haven't responded. Even with an Iphone I haven't had time to sit still long enough to even do that. My Baby Sis is getting a divorce, it's always something. BUT ENUFF BOUT ME HOW ARE EACH OF YOU?? I hope you are all healthy on your way to recovery and families and babies are fine. I think of each of you daily.

Mar 21Reply

ibblesd @mrsingleton714 HOPE YOU ARE OK. Txt me if any of you need to talk. I do answer my texts Msgs daily. Just not rt at the moment it's sent. Please bare with me. God Bless you ALL

Mar 21Reply

rose515 @ibblesd been soooo busy! Xoxo

Mar 26Reply

valentinasan Feel better little dolls my prayer to u! Hugh's n kisses 💐

Mar 27Reply

saphire9172003 @ibblesd :) hope ur daughter gets better soon. She seems like a great kid.. I will surely keep her in my prayers....... U asked about my son all u have to do is go to my closet and click the link at the top it will take u to his page. But u don't have to it seems u have ur hands quite full. God Bless ur daughter...

Mar 31Reply

gettumgirl Hey deb...your so welcome for that page...what's going on with your baby girl now????

Apr 13Reply

gettumgirl Please tell me what Haley loves...not likes...LOVES!!!!!!

Apr 13Reply

ibblesd @gettumgirl I AM SO SORRY I am slow things have been so crazy. She loves anything cheetah print and hello kitty. We've been trying to arrange Fundraisers to go to Jacksonville Fl. To the Mayo clinic for further treatment. Her blood cells aren't reproducing like they should so her immune system is extremely low. She's had lump nodes swelling under her arm pits and itches all night long causing our days and nights to be backwards. So if I don't respond quickly PLEASE forgive me. I am so THANKFUL and BLESSED to have met you and @alu0515 , you two have been the best at keepin up with Haleys illness. I can honestly say I love y'all.

Apr 15Reply

gettumgirl ...aweee...she's so cutie looking just like you!!..humm Mayo huh??...yes I know about the Mayo clinic...is Florida the closet to you guysz...wait what state are you again Tx right??......here's my number...404.578.4630..I know it's probably easier to text especially with Haley being sick and all..@rose515 ...hey Hun how are you...@alu0515 ...our Lil mama...is still not well...:((

Apr 15Reply

rose515 @gettumgirl & @ibblesd hello ladies. I hope u all doin well especially Haley. I been so busy at work & home. Been trying to make my home clutter-free and donating truck loads after truck loads of furnitures, toys, clothes etc to thrift shops like Goodwill. This weekend I concentrated with our tax return and just did my e-file now...whew, felt good that was over with. I'll be growing my own vegetable this summer (not a green thumb nor a gardener) will see how successful I'll be, so I'll start my garden this coming weekend. Anyways enough of myself, I continuously been praying for Halley. Pray.Pray.Pray. Have faith, Keep hoping and stay positive @ibblesd . Will u email me ur address please. Thank you. Happy Monday y'all and gave a very blessed week!

Apr 15Reply

rose515 @ibblesd @gettumgirl *have (darn spell check) lol. I just sent I an email Deb! Xoxoxo

Apr 15Reply

ibblesd @rose515 I want pics of that garden! LoL That is AWESOME you will have so much fun. I am not able to help with ours, my Dad and Hubs does it but I am supposed to be the CANNER! LoL I am praying I will be able to do some this year but if not My Mom will be. I wanna thank you guys for staying in touch. I am slow at responding so bare w/me. Hours in a day are few. Love you ALL

Apr 16Reply

cmb1972 @ibblesd I just "met" you thru the sweetest girl, Laura. Your situation just moved me! How does a mother cope?! I will be thinking and 🙏praying for you and daughter for her health and for you;so you can have the strength to be the very special miter that you are! Keep us posted! Chris @cbarretteysophia@gmail.com

Apr 18Reply

cmb1972 Sorry! @cmb1972.

Apr 18Reply

cmb1972 She is @lau_Champagne7 lovely girl !

Apr 18Reply

ibblesd I want to update everyone on today's events. We went to get the balloon button put in today. After enduring the pain, Haley fainted. Her blood pressure dropped, started running low grade fever, reason unknown and after they got everything under control she would have fainted two more times. Once again at the doctor and once at home. This is part of her illness. So we have to constantly keep an eye on her. We have a LONG ROAD AHEAD BUT SERVE AN AWESOME GOD. He is the only thing that keeps me sane. I am so blessed to have contact and prayers from all of you. GOD BLESS AND PLEASE Don't be offended if I don't respond quickly. The response we have gotten is AWESOME and I try to acknowledge everyone but sometimes there isn't enough hours Ina day.

Apr 19Reply

ibblesd @gettumgirl @alu0515 @rose515 @mrsingleton714 and everyone else following this post. Just had to call 911 at 1:15 am Haley had another fainting spell while in shower. I had to literally pull her out as her eyes dilated, bp dropped, etc., 4th time today. Ring around the Rosie's Dysautonomia style.

Apr 19Reply

gettumgirl Omgosh!!!...prayers going up Hun ...you are right !!..we serve an AWESOME God!!!

Apr 19Reply

rose515 @ibblesd praying for Haley👼. May 15th is my birthday and the day u will be in Mayo clinic. Love & prayers to Haley and family❤😘😘

Apr 19Reply

flippedbygod Whats her name? My prayers are with you and your family.

Apr 19Reply

ibblesd @flippedbygod her name is Haley Dye she is 17 an THANK YOU SO MUCH

Apr 19Reply

ibblesd @rose515 early HAPPY BIRTHDAY that was also my and my husbands anniversary. My kids Daddy passed jan 25, 2006

Apr 19Reply

veronicab Sending continuous prayers and positive vibes <3 My son's birthday is May 15th he'll be 16

Apr 20Reply

ibblesd @alu0515 @veronicab @gettumgirl @rose515 just wanted to let everyone know some family members had a car wash yesterday and the new picture is Haley holding her jar of money and a sign if her favorite saying. We had a long day yesterday and she is exhausted but she was so thankful we both cried like a baby when they handed hEr the money. I want to thank you for your continuous prayers and support. We ARE FREVER GRATEFUL.

Apr 21Reply

rose515 @alu0515 hey girl, just reading ur post, we both have same birthday and that's my favorite quote too that I often tell to my 2 boys ! Amazing!!! ❤😘

Apr 21Reply

rose515 @ibblesd Yayyy for Haley! @carolina50girl I want u to meet Debbie and her daughter, Haley! ❤🌹

Apr 21Reply

rbizzie @alu0515 Aww thank you! I'm just trying to be like you :) these women are inspirational. Sometimes it is hard to remember the God does not give you anything that he has not prepared you to handle and to be given these challenges in life is a testament to their strength. Prayers going up :)

Apr 21Reply

ibblesd @carolina50girl @alu0515 @rose515 @gettumgirl I am so amazed at how many awesome, LOVING people God has blessed me with thru PM. Not counting FB, just by people sharing Haley's story. Yesterday was such a blessing seeing all the people that came up to me curious about her illness, giving donations & actually wanting to meet her. @carolina50girl you are so rt that God gives us things in life to bring us to a point he wants us to end up at. I am savoring every second Haley and I have meeting new people and our journey to getting her well will end her up with the most awesome testimony. God bless each and EVERYONE OF YOU. I don't respond quick due to her illness but I will always keep you updated and let you know we LOVE each and everyone of you for allowing us to be a part of your life.

Apr 21Reply

rose515 @ibblesd @carolina50girl tears of joy reading ❤ I'm so busy spring cleaning and posting everything for free lawn mower to small appliances & furnitures, lotsa toys. people are coming to pick them up! Catch up soon ladies. Have a very blessed week. Bear hugs to Haley!

Apr 21Reply

ibblesd @rose515 you are such a busy bee! They always say bees prepare before there hibernation time and one back ever so strong!!! You are one of my FAVS ON PM.

Apr 22Reply

rose515 @brittany_20 thank you again for ur support. I'd like u to meet @ibblesd Debbie & her beautiful daughter, Haley! ❤😘

Apr 22Reply

ibblesd Just a little update: Haley is getting worse on her itching and not being able to sleep. Which means its her blood. We see the immunologist May 8th and off to Mayo Clinic May 15th. PLEASE KEEP PRAYING..... God Bless you All. But I've gotta say how much I Love these 3 ladies And many blessings to my besties: @rose515 @alu0515 @gettumgirl

Apr 27Reply

gettumgirl ...aweee...deb...God won't allow my daughter and I not to pray for you!!!!...so you're stuck with our prayers forever!!!!...we love you guysz much!!!!

Apr 27Reply

rose515 @ibblesd praying daily.

Apr 27Reply

cmb1972 @ibblesd, how are you? And your precious daughter? I love her quote "will not be define"

Apr 28Reply

ibblesd @cmb1972 sorry I am slow at responding. We are hanging in there. We go to immunology the 8th and Mayo Clinic the 15th and are looking forward to some answers and treatment. Haley itches bad at night and rt now its her blood work that has me so worried. THANK YOU SO MUCH for asking.

Apr 29Reply

cmb1972 @ibblesd , talk to the doctor about it it seems like a reaction in the cocktail of med that they have Her on! That she is allergic to!

Apr 29Reply

cmb1972 @ibblesd , I, think of you and your daughter every day!(what is her name!) Did the Dr. Have diagnostics yet?

Apr 29Reply

ibblesd @rose515 THANK YOU so much for the sweet gifts Haley received today. You are one o the kindest most LOVING PEOPLE I KNOW. I am so blessed to have me you. God Bless You Rose. We love you

Apr 30Reply

rose515 @ibblesd awww, ur welcome deb&haley! U love you guys. I'm always here for you😇❤🌺

Apr 30Reply

ibblesd @cmb1972 she has Dysautonomia , 3 different kinds and there's 4 or 5 of them. Hers is the automic nervous system(?) Central nervous system SOS AND POTS and forget the other one every time. She will find out about the blood when we go to Florida. And thanks to ALL OF YOU! Keep @gettumgirl daughter in your prayers also. She had some stomach biopsies and I pray she's ok.

Apr 30Reply

cmb1972 Deb, you are an angel!! I think of you and Your angelic Daughter! My husband, is out town until Thursday nite, I want to speak to him about your baby, his specialty Neoroligy !

Apr 30Reply

gettumgirl ...hey deb!!!!...you are always on my mind...and my sweet Haley!!!...if you get a moment can you please text me your address..404.578.4630...please ok...we love you!!!!!!

Apr 30Reply

cmb1972 Thinking of you and your baby girl! I wish I, could hep you! Can I send her some books? My email is the.barrettes@me.comdoes she like to read or maybe you can read to her, she is so young; she most be so tired to be in the hospital! My daughter Sophia(8 years old) Last year got very ill first time ever, stomach bacteria my husband brought home,He was sick and Sophia got it to, h.pylori, her pain was horrendous , she would beg me to take her to the ER!was so brave never moved when they would put the iv on! I remember how hopeless I felt to see her in that kind of pain +the 7 antibiotics to kill the bacteria would make her have more pain , she had 2 endoscopics , her stomach develop peptic ulcers all over even in her mouth, this is really hard to kill the bacteria,and the treatment takes 6-7months, with medication pain is always there! Until you kill the bacteria , the lining of her stomach was completely shared to pieces, she would would vomit blood! It was probably the worse time in my life, to see her so weak and defenseless , it was horrible!!! And the ripe she had was aggressive and they treated her very aggressive also! She stated saying things like she (hated )word we don't allow I'm our house...Her body, she miss school and her friends and was tired of being sick of being sick😭they are so innocent ! It's not fair! Now she's fine but it can re-accur! Please, call me if you feel like venting(trust me, I get it) I'm a good listener! (480) 414-9914. Anytime at any hour! I send you and her a huge bear hug! I, can only imagine your pain! And hers😢

Apr 30Reply

ibblesd @cmb1972 that is AWFUL about your daughter. And you are rt they are too young to be so sick. That is VERY SCARY that it can come back. How is that spread anyways? Food? I pray she NEVER gets it again. Haley ❤'s to read. She has been doing it more often lately not being able to sleep. They have had her on Xanax after trying many other drugs and last night she took a Melatonin with it and actually fell asleep 3 hours earlier than usual still it was 5 AM, but that is HUGE for us. So I was blessed to be up by 1 pm. LoL that's a blessing for us. I am really bad about holding stuff inside and not venting. I have many FB and PM friends but no one close at home that takes time to come see me. Everyone is so wrapped up with their own family affairs I know it's hard but I get lonely at times or depressed I should say. But I tell myself its NOT about me it's about her and my son who is at MSU & I miss terribly. My address is 1989 County Road 504 Hanceville Al 35077 Prayers are plenty but she does love gifts as well. A cpl ladies on here have sent her some gifts and she was amazed a stranger took time to send her something so nice. @rose515 @gettumgirl and @alu0515 are 3 ladies I will definitely say you can 100% trust and go OUT OF THEIR WAY to make you happy. I haven't heard from @mrsingleton714 in awhile but she too is a very sweet and trust worthy person. I believe she has had a hard time herself lately. The devil is put to destroy us all that's for sure. I REFUSE TO SINK! God Bless You all and please forgive me for responding so late. I don't ck my phone enough.

Apr 30Reply

cmb1972 You can call me anytime; it takes a village to help and raise child! Don't hold it in , call me! Anytime! my punni, problems yes, our life is hectic! But thank God, Sophia is healthy so far! I, snow how it feels to have child sick and bad news after another! Call me to yell,cry or just to talk. I kNow how it feels! To see your child in pain ,it shatters your heart apart!and the loneliness ,you are not alone! to see them cry.. but I know the helplessness, fell like you there seen your child in pain . And deteriorate in from of yours eyes! So, call me ,your friends , I don't feel like you would be a burner! You have to be strong, she senses your moods, and fells guilty ( because she will believe, that is her fault!)

Apr 30Reply

cmb1972 @ibblesd , do you want to be far book girlfriends? My FB,is Chris Barrette( Phoenix ,scottsdale and you are a , tblessing! And we need to keep you, relax? A question ? Why did the put her in Xanax, for sleeping? Instead of Ambien I that is recommended for sleeping built talorance,not addition 'and for that no to happen they should have her I'm 20 milligrams of regular Ambie for a week than alternate to the Ambien CR, Ambien is a cleaner drug! Meaning she would sleep for 8 hours and wake up with no drausiness . Xanax is a highly additive drug and is extremely hard to get patients of it. The side effects can be pretty serious side efffets, while they try to get patients of it, like seizures , black out and painful withdrawals! Asked why Zanax and no Ambien??? She is so young to be in a category 4 drug for slepp?

May 01Reply

ibblesd She was on ambient. She has been on EVERYTHING. It didn't work. One thing with Dysautonomia is the central nervous system is not like ours. Even Xanax doesn't really work. It still takes her 3-5 hrs after taking it to go to sleep. When I am freezing to death she is hot. Our air stays on and she literally freezes me out of here. HONESTLY she has a hard life. Her blood pressure and heart rate go crazy. If you get a chance google Dysautonomia and read several different ones. She has like 3 of them. POTS, SOS, and I forget the 3rd but she also has an upside down stomach, and her red blood cells are not producing white ones.

May 02Reply

ibblesd @cmb1972 oops I forgot to add the above with this. Also yes, I'd love to be FB friends

May 02Reply

cmb1972 @ibblesd, first, how is Your baby and you? 2.how old is she? 3. I, told my daughter Sophia(8) about Haely! She is sad, and extremely hopeful that She can make Hailey better and say: "I'm going to start making paper cranes so she can get better"! In second grade she read a classic book "saduko" ( in her school, they use the classical method of teaching, Singapore math.. All that they read are the real works of classical books of authors, no pop culture allow.) well this book, I,read it with her, it made us cried! Is written by this little girl's, friend! Basically, is the after the booming of Hiroshima, and the after effects radiation on people there;on this case Saduko, the children would get send to a hospital because of the leukemia( at the time they though its spread) well, her fried tell her that if she made 540 paper cranes she would be heal. Her first one was made of gold paper( color).. I won't tell you the rest, just that my daughter Is hard at work making paper cranes for " Her friend) Hailey, Her teacher pulled me aside today and asked me if things were ok? "Well , aside from the challenge of moving things are as well that can be! I say! than I, asked if Sophia was acting up or extrange ( which for Sophia would be a strech) the movind can be hard for kids her age...and Her yeacher went to tell me that Monday that Sophia told the whole class , that they needed to make paper Cranes, for Hailey! The teacher was very touch and pull me aside to see if it was a family member( because, Sophia was very passionate about making Hailey better! I explain to her, that it was your daughter, so the last art project for the year for the 4, 3rd grade students is not Picasso but compassion, and faith( even thought they don't teach that there to many religions) and believing that other kids no matter how far they live or know in person they touch their little life! So all the 3rd grader are hard at work making paper Cranes to make Hailey better, Even the after scho kids are making them, I, guess the project to "make Hailey better" is spreading thru the School!

May 02Reply

cmb1972 @ibblesd , sorry! For the miss spell of Haley!

May 02Reply

cmb1972 @ibblesd, OMG! Debbie, this is more serious that I originally though it was!!! You are a worrier, your strength is incredible! " people often say "God will not give us something we can't handle" which is true.. But He pick the ones like you! Mother that would do anything for their children! Sometimes I, wonder if man could? But they are to much brain, we, mothers are "hearts!

May 02Reply

ibblesd @cmb1972 AWWWW THAT IS SOOO SWEET!!! It made me tear up!!! Your little Angel is AMAZING! You are amazing for raising such an Angel. The story is def. something we would love to read. And as far as me being strong, it is def. God and his presence thru Haley. Haley really misses her Father and her step Dad is an awesome man but NO ONE takes the place of Dad! My Son being at college makes it hard when I get to feeling sorry for myself but I SHAKE IT OFF an realize how blessed I am. My first son bein an Angel in heaven, my husband and now my daughter makes me wonder what God is trying to show me at times then I realize its ALL ABOUT FAITH! thank you and please THANK YOUR DARLING ANGEL for me and Haley. WoW that is just amazing. ❤💋 💯%Awesomeness

May 02Reply

cmb1972 @ibblesd, Oh sweetie, on top of everything , you lost a child!!!'. My heart💔 hurts for you! What's your FB name, if you don't want to put it here my personal email is the.barrettes@ me.com Words are not enough for be to tell you! How much I admired you as a human being, mother and friend!!!! God sees you! And will lift your amazing heart and has giving you such emotional strength. If something happen to my (only)child I don't think I could go on!

May 02Reply

ibblesd @cmb1972 I don't know if you've met @rose515 but I wanted to introduce you to ANOTHER AWESOME PERSON I ADORE and is nothing but 100% HONEST and loving. Can't go wrong buying from her @gettumgirl how's our baby girl doing? Let her know I am thinking of her daily.

May 03Reply

gettumgirl @cmb1972 @ibblesd ...ok again ...God has awaken me to go to your closet Deb!!!...Chris ...your daughters heart is of Gold!!..tears ...all tears...God has used this site for his Good....he has creatively spun a web to to pull us all together ...even with my daughters situation ...I ask The Lord that even if he does not remove the condition from my daughter that he help me with cup he has given me....and he is/has...the things I've gone through in my life..as a child/now has given me compassion...for every person on this earth ...even people who wrong me....Look at your compassion Chris and Deb for other people...and though we don't like that our babies have gone/going through these things...God chose us...because of our hearts...he knew we could handle it...and it would be for the greater Good!!!!....We can't forget this!!...everything we go through is for the bigger picture ...look at your/our daughters hearts...the compassion for other people the smiles they bare in spite of...you understand ...for the greater good.:)))...I love you guys...spoke to the doctors on Alazjah condition...will know today sometimes...just want to get a name..so we can get her better!!

May 03Reply

ibblesd @alu0515 @rose515 @cmb1972 @gettumgirl Just an update. We are back at Children's due to unbearable itching. Weird looking rash and crying it is so bad. Please keep us in your prayers.

May 04Reply

rose515 @ibblesd , @gettumgirl @cmb1972 you are all in my thoughts and prayers

May 04Reply

gettumgirl @rose515 ...as you are in my prayers as well friend...:)))

May 04Reply

cmb1972 How are you? And sweet Haley?!

May 06Reply

rose515 @ibblesd Hi Deb & Haley! Just wanted into know that I'm thinking of u daily and you are always in my prayers. Keep us posted on Haley's while in Mayo Clinic. My bday will be in a couple of days and I'm just so swamped at work and continuously cleaning my house. I was off today and I cleaned my hubby's closet while he was at work and donated a car load of he's clothes, suit, pants, etc. at the Thrift shop! So my day is very productive 👍 Love you guys @ibblesd, @gettumgirl, @cmb1972 & @alu0515 (happy bd my twin sistah) 😘😘😘😘😘😘

May 13Reply

gettumgirl @rose515 ...I love you..:)))

May 14Reply

ibblesd Thank you so much for the prayers. @rose515 . I'm so sorry I have been more than busy getting Haley ready for Prom, our trip on top of being sick. Our transmission went out in the truck, my baby sister decided to get a divorce it's one thing after another. I am stressed out but still pushing myself for what has to be done. I know God is going to deliver me from this sickness and my baby girl is going to get Her answers soon. @alu0515 I will keep y'all posted and add pictures soon. @gettumgirl @mrsingleton714 @cmb1972

May 14Reply

ibblesd We are leaving for the Mayo clinic in 2 hours. We were going to leave at 12 am but as usual I am running late. Transmission tore up in the truck so we are going in a 98 Buick so keep us in your prayers. Haley went to prom and enjoyed it but really suffered the next two days because she went without her feeding tube. We are looking forward to finding our road to her cure!!! God Bless everyone @gettumgirl @alu0515 @rose515 @cmb1972 @mrsingleton714 And whoever else has been following Sorry those are the ones I remember by heart .

May 15Reply

gettumgirl Will keep you guys in my prayers matter of fact me say one right now as you travel..father God I ask you in the name of Jesus to please keep deb and her family covered with your blood as they travel..Lord I ask that you cover that vehicle and that your big strong angels stay holding that Buick together..we love you Lord for all you do and all you're going to do..In Jesus name we Pray Amen...:)))

May 15Reply

gettumgirl I will text you..for I know you will be busy...:)))

May 15Reply

rose515 @ibblesd my love & prayers to Haley, you and your family. ❤😘

May 15Reply

ibblesd @rose515 @gettumgirl @alu0515 just wante to let y'all know we are home. We had 2 FULL DAYS of testing and go back in July. I am doing a fund raiser on GOFUNDME. I hope to have more items up for sale soon or sell what is already up. We gotta do this to go back so please keep us in your prayers. Thanks and God Bless We LOVE YOU GUYS

May 20Reply

gettumgirl You are always in my prayers Hun!!!!...I know your dogs missed you..lol...we sure do...:)))

May 20Reply

cmb1972 Hi sweet Debra, , and all the sweet friends: Sorry I've been out of the loop, We finally moved to NJ, last Wednesday! We move to another hotel hopefully for no more than 2 weeks... Our home is getting painted, waiting for our cars and our 22tons of stuff! Which I'm not looking forward on unpacking😁that's what going on with us. Deb ,how is Haley? You. Rose how are you?@gettumgirl, how was your move? And your Sweety? @rose515 how are you feeling ? Even thought I, been soo busy I thought of you special girls! I send a heart full of love and hope!

Jun 03Reply

gettumgirl @cmb1972 ..hi Chris!!..@ibblesd ..hey deb..hunny.......@rose515 ..hi rose..is everything ok??,...Chris...yes we moved last Tuesday...28th...when I tell you I can't stand to move..,but no complaints ...God has his plan...all these lol stepping stones for us right????....everything for the good of him..gals...I love you all..and I do pray for you guysz as well!!!..love youuuuuu...:)))))

Jun 03Reply

chicharito God bless you and your precious daughter ,hope He will give you the strength ,the patience ,and love!! My prays with you!!

Jun 14Reply

ibblesd @chicharito thank you so much. We are leaving July 8th for our second trip to The Mayo Clinic @alu0515 . @gettumgirl @rose515 @mrsingleton714 hope all of you are doing well.

Jun 20Reply

chicharito Just remember,....God is with your daugther and you!!! You guys have the strength ,everything will be ok!! God bless you!!! You guys are in God hands !! Big hug for you and your daughter !!

Jun 20Reply

gettumgirl @alu0515 @ibblesd @cmb1972 @rose515 ..hello everyone!!!!...thinking of you!>>>>

Jun 20Reply

yamilove19 Hello, i dont know who you are but, i am a mother and i totally undersand the love you feel and how much you care about your daughter. May God bless you all and cure your daughter soon. 💛💛💛

Jun 22Reply

nancycorrea2 I'm sorry for your struggles..I'm currently in the process of getting my nursing degree.. Your family will be in my prayers! May God watch over your daughter.

Jun 23Reply

ibblesd @yamilove19 God Bless you THANK YOU SO MUCH

Jun 23Reply

ibblesd @nancycorrea2 THANK YOU! Good luck with your endeavors I will keep you in my prayers a well. THANK YOU EVERYONE

Jun 23Reply

nancycorrea2 Thank you sooo much!! I appreciate your prayers! God Bless You!!

Jun 23Reply

cmb1972 How are you guys? Been thinking of you!

Jul 01Reply

ibblesd @cmb1972 thanks for asking. We are gettin ready for our second trip to the Mayo Clinic. We leave Monday July 8th.

Jul 02Reply

iloveto_sparkle Okay so I just took my time reading every single comment on here! @ibblesd you have found such great women on here to support you & your daughter daily with prayers, love, & support. My daughter is 2, I really think what's going on with your beautiful Haley is something that any mother can feel empathy for you. As everyone is so faithful here, this post is just SO FULL OF LOVE & FAITH for Haley through our Lord! There's nothing that could have stopped me from commenting on this post! @cmb1972 the chain thing your daughter got her whole school into is truly a treasure! Leaves me speechless! What a truly amazing little girl you have raised! @gettumgirl YOU are such a sweetie! I see you all over posh on all the Good Poshers closets - you are amazing as well as your daughter & I hope she is better! My prayers to all of you for being such amazing women & friends to @ibblesd in a time when that's exactly what she needs! @ibblesd Debbie like I said your story, or rather, your daughters story is a very sad it very inspirational! Haley is a CHAMP! She is such a GORGEOUS girl! She looks just as pretty holding that can w her FAV quote as she does in her prom picture! She's 17? What a heart of gold - I can't imagine the strength the two of you have - it seems to me like you have a very special & precious bond with your daughter, keep that bond - for no matter any girl/women's age, we all want our mommy's when we don't feel good! Debbie you are an angel, your so strong & you mustn't ever keep your feelings in, for there are far too many of them for one person to handle, hand them over to God, like the song "Jesus Take the Wheel" by Carrie Underwood - or you have all these amazing women (plus didn't I see you say something about FB? I'd LOVE to be your FB friend OH & I'd also love the link to the fundraiser you put together online!) I can't imagine the itchiness she has to deal with, I can't imagine anything she has to deal with & yet she does & she's just so strong! I hope you will send her my love, thoughts & prayers! I'd love to put together a "care package" for Haley! I saw you said she loves leopard print & hello kitty? Is there anything else? You said that she has been reading & does love to read, what kind of books is she into? What about magazines, singers? Can she wear jewelry & if so what kind? Does she need clothes or anything like that? What size is she? What does she like to do to keep busy during the hours she can't fall asleep? I really want to send her a thoughtful "care package" BUT I'm having a hard time thinking of perfect ideas since I don't personally know her or you. I'm going to be a "regular" on this post now as I know I'll never get her out of my head, you 2 have made a tremendous difference to me & I couldn't forget Miss Debbie or Miss Haley if I tried! I'm in NO RUSH as I know how busy you are & how your sleep patterns are different! I want you to know how deeply touched I am after reading everything. I just want to give you & Haley a HUGE hug!!! Two of the strongest women I've heard of!! So please Debbie, when you do get a chance to check your notifications, even if you have to think for a bit to get the answers like I said WHENEVER is fine with me! I'm just really excited to get to making & putting together her care package! I'm going to start it now, with things that I know she will love (shh don't tell her it's a surprise but I'm going to start on a collage, a collage of quotes, quotes like the one you said is her favorite!! I'm going to make one so she can hang it up near her bed wherever she goes & always be able to read the inspirational quotes! When I was her age & even still now a lot of times, quotes helped me through tough times - I've been a quote hoarder for over 10 years! SO I know I have so many good ones & I know I can get so many more so I think I will do an 8x10 & get it laminated so it can travel with you guys!!) but besides that and a couple other things, I would like it to be a bit more personal for Haley, so whenever you can, like I said, just try to give me some ideas on celebrities she likes or magazines or what kind of books, does she like arts & crafts or even coloring? OR I can send her stuff to make her own collage! I don't know how much energy she has to do stuff like that so that's where MOM comes in!!! So let me know what she's into - everything!!! And I will be PRAYING in the mean time & starting on her collage! I hope she is doing okay, that you're doing okay & that I hear from you soon! It's SO NICE to meet you & Haley!! You two are forever stuck in my mind & always in my prayers from this day on! MAY THE PEACE OF THE LORD BE WITH YOU ALWAYS & MAY GOD LOOK AFTER YOU AND YOUR DAUGHTER HALEY!!!! AMEN! Hugsssss & kisses!!!!!

Jul 02Reply

cmb1972 Is Healy better? We moved but our mover forgot, that our things should be be here not in Scottsdale! No enough driver!!!!!!enough of me how is the treatment going?

Jul 02Reply

gettumgirl @iloveto_sparkle ..meg you are really sweet...thank you for your comment..:))

Jul 02Reply

jbonds007 Lord God please touch this family right now. Lord you know all about this baby's condition and what she needs to recover fully. Father you are the ultimate healer - please touch and comfort as we speak. Lord your word says many are the afflictions of the righteous and the Lord deliverith out I them all. Please deliver this baby from all sickness and pain. I ask all of the things in the matchless marvelous wonderful name of Jesus - Amen, Amen, and Amen again.

Jul 05Reply

gettumgirl @jbonds007 ...in Jesus name I pray amen!!!!

Jul 07Reply

jbonds007 @gettumgirl touched and agreed lady bug! Create a Wonderful Day!

Jul 07Reply

belladior May I repost on my page?? I too am ill. Haven't worked in 2 years. I refuse to give up tho and am in tears as I write this. Let her know IT DOES NOT DEFINE HER. She will continue to live and giving in is not in my vocab- so continue to smile luv.... I don't post my illness - I'm selling my entire closet to help w things for my teens. I refuse to be labelled. I believe sometimes GOD has a wierd sense of humor. N there is a reason I am where I am today.. Have a great day and u are in my prayers🙏🙏🙏🙏🙏

Jul 07Reply

belladior @gettumgirl thk u for posting.. 🌹🌹

Jul 07Reply

gettumgirl @belladior ..anyway I can bring awareness..:))

Jul 07Reply

couturegirl I found you from @gettumgirl and this breaks my heart. I hate to see anyone, especially young ones, suffering like this. But to read that sign is so powerful and uplifting, the best way to be through times like this. I'm a stage 3 cancer survivor and know what the power of positivity does not only to the system but more importantly to your soul. My thoughts and prayers are with you all. Hope the visit on the 8th went well. Much love😘💕@jefsweetie @ahabit @mystellabelle @cmjla @sassyhill1224 @shoogal82 @mswhite56 @tinker_bell @gypsyangel @scarlettstained @estefany @msupgrade I know some of you guys understand dealing with serious medical issues and thought you could send prayers and help share her stuff!!

Jul 11Reply

gettumgirl @couturegirl ...Penelope ...thank you for all the shares...and even better the prayers for my posh sis @ibblesd ...thank you for asking your posh buddies to do the same...as I'm writing this she just text me to let me know the test have began...everyone is in good spirits..:)

Jul 11Reply

couturegirl @gettumgirl Well tell her she has a few more people praying for her!!

Jul 11Reply

gettumgirl @couturegirl ...of course I will...matter of fact when she looks at her posh she will thank you herself!!!...@ibblesd ..:)

Jul 11Reply

ahabit @ibblesd your daughter is absolutely beautiful and is so strong a determined as pictured it just melts my heart to see her with this struggle😩and mom for you to have this heart ache I know is such a hard thing as well! I have two children 14 and soon to be 12 and could never imagine such pain to be inflicted and not being able to help! I will pray for your family💞please give your daughter a big hug and kiss and tell her this crazy lady made me do it😂😂please hold tight mom and hold on I know it's has to be rough😘💋

Jul 12Reply

ibblesd @mystellabelle thank you so much. We've been extremely busy at the Mayo Clinic in Jacksonville, Al and have found out she may possibly have an artery that collapses and could be the cause of her stomach problems. We are having a test done Monday and if it shows it is they can put a stent in. Thank you for the prayers. I hope everyone forgives me for being so slow to respond. @gettumgirl Has been such an Angel at contacting me on Facebook when I get too far behind. God Bless You ALL AND KNOW I TRULY LOVE YOU.

Jul 14Reply

gettumgirl @ahabit ..@couturegirl ...look at the new news..:)^^^^^

Jul 14Reply

gettumgirl @ibblesd ...Debbie so glad answers are finally being found...God is Great!!!!...we serve a God that will never leave us hanging...for I love him so...as I love you and all our posh family!!!!

Jul 14Reply

couturegirl That sounds positive..I pray that this can happen❤Please know that you are both in all our thought and prayers. @gettumgirl Thanks for letting us know. You are an amazing & supportive friend!

Jul 14Reply

marly911 @tleeboca 👆👆 I will keep her in prayers.

Jul 15Reply

ahabit @gettumgirl @ibblesd oh that sounds so positive and I pray that that will relieve her problems and allow her to be discharged!💞👏❤💙💛💜

Jul 16Reply

gettumgirl @ahabit ...yes amber it's great news!!!...at last some answer have been found at the Mayo clinic...sooo happy for them...it's a beginning...:)))

Jul 17Reply

samsd0ll Shes so beautiful. Hope things work out good 😣😓Any new results from itching and swollen lymph notes??? 😥😥😥

Jul 17Reply

southernstyle88 @ibblesd Hey Debbie, I'm praying for your Daughter daily. You've got some 💪Prayer Warriors aboard ex. @gettumgirl This woman, Mother, Seller, & Most of all Prayer Warrior is out of this 🌍. She probably doesn't even know it, but I keep up with her & I still pray for her precious Daughter & Angel. Us Posher Girls & Prayer Warriors will stand 💪inPrayer & in times. Of need. My email is sherrys8888@gmail.com please email me the info where I can donate. I don't have much, but will give what I can as I am unable to work. But I can share your closet & I did today. Hope that helped. I hold you & your Daughters in close Prayers daily, Sherry

Jul 27Reply

gettumgirl @sherry8888 I thank you for being the person you are!!!..we love our posh sis @ibblesd ...and you're no different for we love you too...:)

Jul 27Reply

ibblesd @couturegirl @belladior @gettumgirl I am so sorry I haven't been on. I do need to check back more. We have found out Haley is going to have a stent put in an artery to her heart on our next visit to Mayo. I have been so busy working with the school trying to get her to be able to do credit recovery for her senior year. I am SO BLESSED to have ALL OF YOU in our life with the prayers, gifts etc. it's hard for me to remember the names of all and this app should put newest msg on top not bottom. LoL I thought I sent this earlier SORRY IM SO SLOW GOD BLESS YOU ALL AND HAVE A BLESSED WEEKEND

Jul 27Reply

ibblesd @sherry8888 GOD BLESS YOU NEW FRIEND you are in my prayers and please don't hesitate to come right here and request prayer. I hope to start buyin again once I get my daughter healed. We are doing fundraiser each time we go and it's not easy not wanting to purchase new things but I just can't rt now. I pray for all of you to be blessed, have health & please know I love you each and everyone

Jul 27Reply

gettumgirl @sherry8888 ...*^^^^^*...Look at what God can do...it's a BreakThough for @ibblesd !!!!!

Jul 27Reply

ibblesd @sherry8888 you're an angel and want to apologize for not being on much. Since I don't get to shop lately my apps are organized on my phone from most used to less used. I moved pm to the 2 nd page today so I will see it more often to remind me to check back. I pray each of you have an awesome weekend And pls forgive me for not checking back sooner. Thank you for the prayers SO BERY VERY MUCH!!!! we still need them as I will pray for all of you as well

Jul 27Reply

treysgrandma @ibblesd @gettumgirl You 2 are AMAZING women with big hearts and precious girls! I LOVE to see the positive between the two of you! Your camaraderie is stunning and awe inspiring!! I told gettumgirl all this and much more on her closet listing and would love to repeat the whole thing again to you as well, Deb, but am dealing with my own health issues and am exhausted!! Your daughters motto about her illness not defining her....she doesn't just say those words she LIVES it you can tell!!! I am just so humbled by you both! I hope to keep up with you all and how everyone is doing! Thank you for keeping this running diary on here so some of us Poshers can see the POSITIVE on here and not all the petty negative! Thank you!!!!!!👍👍💕💕💕👌👌💜💜💜🙏🙏🙏

Jul 27Reply

couturegirl Never apologize for not being able to respond!! We all understand that you are dealing with so much. I will continue to keep Haley in my prayers and hope for the stent to work. Please let her know that I am thinking of her❤

Jul 29Reply

camilleorja @ibblesd just sending some love and prayers to you your family and especially your daughter! She's beautiful 😊🌹 please send her my love 😘❤❤❤ you are all in my prayers 🙏🙏🙏

Aug 01Reply

micacouture1906 May GOD Bless you & your family through this please know I'll keep you & your daughter in my prayers asking for a spiritual healing!!!

Aug 02Reply

ibblesd @camilleorja thank you very much. Prayers to you as well. ALL OF YOU are so close to my heart.

Aug 04Reply

mde27 I have a daughter also and I can only imagine what u have been thru and still go through. Ur little girl is beautiful and will go on to do amazing things in her life! Ur family will now remain in my prayers always! Prayer is powerful and know so much love and prayer is around ur daughter! Xo 🙏🙏🙏🙏🙏 thank u @gettumgirl for sharing this the more prayers the better and I pray that ur little girl is doing well also and I promise to keep her in my prayers too! God is good what he brings u to he will bring u through! I am going on almost 3 yrs cancer free he helped me and he will help ur families too! All my love prayers and positive Energy to u all!

Aug 07Reply

gettumgirl @mde27 ...@ibblesd ...would love that her daughter Haley is in your prayers...you have been cancer free 3 years??..wow!..what kind if cancer???

Aug 07Reply

mde27 @gettumgirl I had kidney cancer which was pretty rare at 37

Aug 07Reply

gettumgirl @mde27 ...wow!!!...did you have chemo???

Aug 07Reply

mde27 @gettumgirl no chemo or radiation but had to have my left kidney removed. I was thankful it was caught in time to remove it bc some ppl don't find it until it's in both kidneys and that's big trouble!

Aug 07Reply

ibblesd I am thankful to have such AMAZING people in our lives. I apologize for not returning as often as I should. My Internet doesn't work at home other than my phone & I have just about ran out of memory on my iPhone so deleted some apps, pictures & my apps keep getti. Shuffled onto second page, which I am BAD about forgetting. I guess out of site out of mind. I have just been so tired lately, our days & nights are so backwards. I invite any of you to add me on Facebook. I have family & friends I keep in touch with daily and am a little more attentive. I haven't been selling anything so I apologize for not responding. You all are dear to me & I still think of @gettumgirl @rose515 @alu0515 and @mrsingleton714 very often. You guys have been so sweet to Haley & I don't want you to ever think I don't appreciate what you have done. My Facebook name is Debbie Dye Smith (Debbie Neuman) . I hope it's ok to post that. LoL I am praying for each of you. Your health, families, and I pray for Gods continuous blessings upon you daily.

Aug 18Reply

rose515 @ibblesd so great to hear from u my friend. 😘😘

Aug 18Reply

katieannep Sending constant love and prayers

Aug 26Reply

maggie_pie @ibblesd I will be lifting you both up in prayer!

Aug 28Reply

fashionlover125 @ibblesd My prayers will be with your baby girl and family through this difficult times🙏😍

Sep 05Reply

fashionlover125 @ceege Shared and prayed babe😘

Sep 05Reply

avadisilva Sending hugs and prayers

Sep 05Reply

emmequinn I am so sorry to read about what your family is going through. It breaks my heart to hear about any child suffering.. Esp such a happy and beautiful little girl like yours! I have three little rugrats and don't know what I would do to see them suffering! You are in my thoughts and prayers. If there is anything you need.. Please let me know! Money is not something we have alot of at the moment but Id be happy to do what I can!

Sep 12Reply

ibblesd @gettumgirl I truly, from the bottom of my heart THANK YOU SO MUCH for keeping everyone updated. It's hard for me to remember each name and thank each and everyone for the prayers on here the way the app makes you have to scroll up as it won't let me copy & paste. My memory isn't that good and God has blessed me with so many of your prayers I hope you ALL see this. I don't get on as much and Facebook is my main way of communicating since I haven't been selling anything lately. Haley has ha a seizure since my last update. She has to have another brain scan , a stent put in a artery to her heart & has fell Into a deep depression. PLease Keep the prayers going and I hope to be able to get back on posh and enjoy it as much as I did in the beginning. I am truly thankful for this app and it allowing us to communicate. I will definitely pay it forward one of these days for the blessings God has given me. We are still in desperate need o fund raisers now more than ever. My husband is a gospel singer. He hasn't traveled in years but has decided to start back and other churches have offered to help. So God is working. I hope I don't bombard you @gettumgirl with all this and I pray for you and your family, your baby girl and think of you more than you know. If I ever get to go thru Atlanta again I will definitely let you know so we can haw a quick brunch, coffee or something. Love and hugs and kisses to all of you 💋❤

Sep 12Reply

gettumgirl @ibblesd ...Debbie girl you know I will do as much as I can to help you...I love you and Haley..and you know you stay in our prayers...wow another seizure...ah!...my baby..@carenlovesgucci @alu0515 @patricewymore @piecesofjen @imanimom ...please read the latest update at the bottom for Lil Haley has had another seizure and needs a stint put in...please ladies send prayers up......

Sep 12Reply

carenlovesgucci @ibblesd Debbie! What a beautiful brave girl! @gettumgirl Thank you for the tag Charm! You and your daughter were just added to my nightly prayer list!God is good and I know HE WILL HEAL this angel on earth!

Sep 12Reply

patricewymore @ibblesd @gettumgirl Sending my prayers and thoughts to you.

Sep 13Reply

patricewymore @ibblesd @gettumgirl Debbie and Charm. I realized we have been watching Haley's progress since Charm first sent the photos of her....."I will not be defined by my illness....sending prayers and warm hugs for this precious child!

Sep 13Reply

gettumgirl @rose515 ..look at the update from today...haley had another seizure..prayers going up..:))

Sep 13Reply

tdmcgarity @ibblesd Father God I pray right now that you pour down your healing power from the crown of her head to the soles of her feet. You said that by your strips we are healed so I bind every attack of the enemy against her body, spirit and mind and I stand in agreement with every faithful person in prayer. I declare and decree that NO weapons form against her shell prosper. Strengthen her family and cover them with your love, grace and mercy. Let this Father God be a testimony for them to be a blessing for another family and blessed them above and beyond what they could ever imagine or ask for in Jesus name amen.

Sep 14Reply

rose515 @gettumgirl hi thx for the updates. I emailed deb few weeks ago but I never heard back fr her. Hailey & family always in my prayer 😇

Sep 14Reply

ibblesd Hey everyone. Our Internet has been down. @rose515 I am so sorry. Y'all PLEASE JUST TEXT me At 256 590 6561 I feel so bad. I would never ignore anyone I just have so many inbox messages on Fb and phone calls on top of what all else has happened It's too much to type so call or text me please. We had MRI today. More test coming up and mayo clinic in November.. Please forgive me

Oct 03Reply

suramasr I hope she is doing ok :( Praying for her i want to add her to my FB and you too. How is is doing?

Nov 20Reply

ibblesd So sorry I haven't been on in a long time. We are back at the Mayo Clinic and Haley has gotten a little worse. Please continue to pray for her. She is still on feeding tube, her intestines are trying to shut down, stays dehydrated and heart rate I still high. She has had a few seizures as well.

Dec 17Reply

ibblesd Just wanted to drop by and apologize for not being on lately. If anyone wants to truly keep up with Haley's condition I have a prayer page as well as my own on Facebook. Debbie Dye Smith or prayer chain for Haley Odessa Dye. Things seem to get better then we take 3 steps back. I've been in a state of depression & just need prayers. I could be selling but just haven't had the GET UP in me. I know I need to probably snap out of it, as some say, but I have an illness myself I DONT discuss & just could use the extra prayers. If any of you need prayer as well please let me know. Thank you so much for those that have stayed in touch on FB, I don't even get on it as much, but until I have things to sale I don't feel it's appropriate to use PM for my situation. Thanks so much again, and God bless you all

Jan 19Reply

valentinasan Hope u feeling better..... If u need anything please let me know! Praying for u n ur family🙏

Feb 04Reply

fatlucy @ibblesd hello Debbie I'm sorry for what you're going through and I want to share with you something that always help me " throw all your anxiety on GOD because he cares for you" 1 Peter 5 . 7

Aug 16Reply

fatlucy @ibblesd hello Debbie I hope that Haley is getting better as a mother I feel your pain but never forget the power of prayer because sometimes when we see no way out our grand creator is always there for us in the BIBLE in the book of 1 peter 5.7 we read " while you throw ALL your anxiety on GOD because he cares for you" it's very reassuring to read and to know that he will give us the strength to endure our trials and tribulations .

Aug 18Reply

cupiedoll25 Oh u meant the TS jewelry! I'm still really new here..lol...I'll try to put it on hold or just reject offers or purchases if u want me to? No prob!

Jan 30Reply