Ehlers-danlos Awareness
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Ehlers-danlos Awareness - disabilities are not always visible.
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ehmmoney
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26 others
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25 Comments

chronicallyposhzebra here:) nice post!
Feb 26Reply

bayatelierco@chronicallyposh hi there fellow zebra !
Feb 26Reply

chronicallyposh@bayatelierco Hi!!
Feb 26Reply

thepeachfizzDazzle 🦓
Apr 04Reply

nikane64Fellow Zebra! 🦓
May 14Reply

bayatelierco@nikane64 ♡♡♡
May 14Reply

nikane64@bayatelierco My docs were certain I had hyper mobile EDS. Genetics testing showed FBN1 gene mutation which is consistent with Marfans Syndrome! I also have POTS from it all and several other diagnoses
May 14Reply

bayatelierco@nikane64 oh man! I've inherited HEDS from my mom's side and with it POTS, Sjögrens, fibromyalgia, ect
May 14Reply

nikane64@bayatelierco my initial diagnosis was fibro. Now we know it’s so much more. Usually that tends to be our first diagnosis and a wrong one.
I really am not sure where I’ve gotten it as no one else in my family seemed to have anything like this
May 14Reply

only14moFellow Zebra here! I also have Chiari Malformation among several other diagnoses…
Hope you all are doing well. 💜
Jul 14Reply

bayatelierco@only14mo hi!! nice to meet you, I hope you are well too!
Jul 15Reply

mmjennings6What are you selling? Magnet, printout, ?
Aug 06Reply

brooklynnchickI feel like it would be just awful to give EDS a “love” but I do love that you are teaching folks! I also have crazy rotten DNA (Wilson’s Disease) and am taking back my zebra-ness, or earning my stripes. Thanks for letting your uniqueness brighten my day - best wishes on your health journey. You are strong, you are wise, you can trust yourself. 🦓💕
Dec 11Reply

bayatelierco@brooklynnchick best wishes to you as well!
Dec 13Reply

nursemiarn99@only14mo same here :)
Jan 16Reply

nursemiarn99@nikane64 Same here as well as my daughters
Jan 16Reply

xxbrittany11814Also a fellow EDS zebra! Hi y’all! 🖤
Apr 26Reply

bayatelierco@xxbrittany11814 hey girl!!!
Apr 27Reply

elizabethandraenewly diagnosed hEDS-er! Following your closet 🥰
Jun 26Reply

vivl207Hi fellow zebra loves 🦓🦓🦓
Jul 14Reply

amazonian786I’m married to a majestic 🦓 ❤️ she is a bit down this week due to EDS related complications. Hang in there everyone and as my wife says “gently hugs” ❤️
Aug 15Reply

bayateliercojust wanted to say everyone here is amazing!!!😍😍
Aug 16Reply

riverjunction🖤💜🤍
Nov 26Reply

runningon3csHi, fellow zebra here.
Jul 13Reply

eclecticzebraZebra n' Marfans here!- shared your poster-Love it! ((gentle hugs!)) I hope you all have a Happy and safe Thanksgiving!
Nov 22Reply
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