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Ehlers-danlos Awareness

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Ehlers-danlos Awareness - disabilities are not always visible.

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Comments (25)
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runningon3cs
runningon3csHi, fellow zebra here.
Jul 13Reply
eclecticzebra
eclecticzebraZebra n' Marfans here!- shared your poster-Love it! ((gentle hugs!)) I hope you all have a Happy and safe Thanksgiving!
Nov 22Reply
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chronicallyposh
chronicallyposhzebra here:) nice post!
Feb 26Reply
bayatelierco
bayatelierco@chronicallyposh hi there fellow zebra !
Feb 26Reply
chronicallyposh
chronicallyposh@bayatelierco Hi!!
Feb 26Reply
thepeachfizz
thepeachfizzDazzle 🦓
Apr 04Reply
nikane64
nikane64Fellow Zebra! 🦓
May 14Reply
bayatelierco
bayatelierco@nikane64 ♡♡♡
May 14Reply
nikane64
nikane64@bayatelierco My docs were certain I had hyper mobile EDS. Genetics testing showed FBN1 gene mutation which is consistent with Marfans Syndrome! I also have POTS from it all and several other diagnoses
May 14Reply
bayatelierco
bayatelierco@nikane64 oh man! I've inherited HEDS from my mom's side and with it POTS, Sjögrens, fibromyalgia, ect
May 14Reply
nikane64
nikane64@bayatelierco my initial diagnosis was fibro. Now we know it’s so much more. Usually that tends to be our first diagnosis and a wrong one. I really am not sure where I’ve gotten it as no one else in my family seemed to have anything like this
May 14Reply
only14mo
only14moFellow Zebra here! I also have Chiari Malformation among several other diagnoses… Hope you all are doing well. 💜
Jul 14Reply
bayatelierco
bayatelierco@only14mo hi!! nice to meet you, I hope you are well too!
Jul 15Reply
mmjennings6
mmjennings6What are you selling? Magnet, printout, ?
Aug 06Reply
brooklynnchick
brooklynnchickI feel like it would be just awful to give EDS a “love” but I do love that you are teaching folks! I also have crazy rotten DNA (Wilson’s Disease) and am taking back my zebra-ness, or earning my stripes. Thanks for letting your uniqueness brighten my day - best wishes on your health journey. You are strong, you are wise, you can trust yourself. 🦓💕
Dec 11Reply
bayatelierco
bayatelierco@brooklynnchick best wishes to you as well!
Dec 13Reply
nursemiarn99
nursemiarn99@only14mo same here :)
Jan 16Reply
nursemiarn99
nursemiarn99@nikane64 Same here as well as my daughters
Jan 16Reply
xxbrittany11814
xxbrittany11814Also a fellow EDS zebra! Hi y’all! 🖤
Apr 26Reply
bayatelierco
bayatelierco@xxbrittany11814 hey girl!!!
Apr 27Reply
elizabethandrae
elizabethandraenewly diagnosed hEDS-er! Following your closet 🥰
Jun 26Reply
vivl207
vivl207Hi fellow zebra loves 🦓🦓🦓
Jul 14Reply
amazonian786
amazonian786I’m married to a majestic 🦓 ❤️ she is a bit down this week due to EDS related complications. Hang in there everyone and as my wife says “gently hugs” ❤️
Aug 15Reply
bayatelierco
bayateliercojust wanted to say everyone here is amazing!!!😍😍
Aug 16Reply
riverjunction
riverjunction🖤💜🤍
Nov 26Reply
runningon3cs
runningon3csHi, fellow zebra here.
Jul 13Reply
eclecticzebra
eclecticzebraZebra n' Marfans here!- shared your poster-Love it! ((gentle hugs!)) I hope you all have a Happy and safe Thanksgiving!
Nov 22Reply
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