Ehlers-danlos Awareness

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Ehlers-danlos Awareness - disabilities are not always visible.

ehmmoney and 26 others like this

25 Comments

chronicallyposh zebra here:) nice post!

Feb 26Reply

bayatelierco @chronicallyposh hi there fellow zebra !

Feb 26Reply

chronicallyposh @bayatelierco Hi!!

Feb 26Reply

thepeachfizz Dazzle 🦓

Apr 04Reply

nikane64 Fellow Zebra! 🦓

May 14Reply

bayatelierco @nikane64 ♡♡♡

May 14Reply

nikane64 @bayatelierco My docs were certain I had hyper mobile EDS. Genetics testing showed FBN1 gene mutation which is consistent with Marfans Syndrome! I also have POTS from it all and several other diagnoses

May 14Reply

bayatelierco @nikane64 oh man! I've inherited HEDS from my mom's side and with it POTS, Sjögrens, fibromyalgia, ect

May 14Reply

nikane64 @bayatelierco my initial diagnosis was fibro. Now we know it’s so much more. Usually that tends to be our first diagnosis and a wrong one. I really am not sure where I’ve gotten it as no one else in my family seemed to have anything like this

May 14Reply

only14mo Fellow Zebra here! I also have Chiari Malformation among several other diagnoses… Hope you all are doing well. 💜

Jul 14Reply

bayatelierco @only14mo hi!! nice to meet you, I hope you are well too!

Jul 15Reply

mmjennings6 What are you selling? Magnet, printout, ?

Aug 06Reply

brooklynnchick I feel like it would be just awful to give EDS a “love” but I do love that you are teaching folks! I also have crazy rotten DNA (Wilson’s Disease) and am taking back my zebra-ness, or earning my stripes. Thanks for letting your uniqueness brighten my day - best wishes on your health journey. You are strong, you are wise, you can trust yourself. 🦓💕

Dec 11Reply

bayatelierco @brooklynnchick best wishes to you as well!

Dec 13Reply

nursemiarn99 @only14mo same here :)

Jan 16Reply

nursemiarn99 @nikane64 Same here as well as my daughters

Jan 16Reply

xxbrittany11814 Also a fellow EDS zebra! Hi y’all! 🖤

Apr 26Reply

bayatelierco @xxbrittany11814 hey girl!!!

Apr 27Reply

elizabethandrae newly diagnosed hEDS-er! Following your closet 🥰

Jun 26Reply

vivl207 Hi fellow zebra loves 🦓🦓🦓

Jul 14Reply

amazonian786 I’m married to a majestic 🦓 ❤️ she is a bit down this week due to EDS related complications. Hang in there everyone and as my wife says “gently hugs” ❤️

Aug 15Reply

bayatelierco just wanted to say everyone here is amazing!!!😍😍

Aug 16Reply