Beau Updates

Hi all, it’s been a minute - I’m just going to get right into the updates. Beau is still has dots in his vision. He is currently off of steroids and has had no issues with his adrenal glands bouncing back :) He has his monthly IVIG that are about 5 hours long. Those can be hard to get excited about hhahaha but Lego sets are helping and potato chips. He just had an eye appointment and the outside of his nerves are thinning - this could be a sign of healing or could be permanent damage. Eyes take a long time to heal which I think has my family a little antsy. But we are getting through it and keeping positive. September is a big month - last session for IVIG and his mri and lumbar puncture. I’ll keep you all posted on those. I appreciate you all - keep the prayers coming and thank you for walking this out with us. The finish line is in sight.