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CMV AWARENESS

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Size: #stopcmv
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cCMV is the leading cause of congenital birth defects. The severity can range from mild to death. This is TOTALLY preventable!! Our son was born with white matter brain disease and has Spastic CP as a result. The most common effects are: deafness, blindness, brain damage, and death. Liver/kidney disease are also common! Find valuable info on how to protect your unborn baby, stopcmv.org, go there NOW!!! Thank you!

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Comments (191)

stardust55@mandapanda83 I am positive for a similar virus, HHV6, as well as reactivation of Epstein-Barr virus and mycoplasma bacteria. I am chronically ill. I worry I won't ever be able to get rid of these viruses and bacteria, therefore I will never be able to have a child. Does anyone actually get rid of our viruses??

Mar 07Reply

1pickyshopper@mandapanda83 I'm so glad your back, how is your little one doing, did casting the legs help. I hope your doing well😀

Oct 16Reply

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mandapanda83@lexastahl Thank you very much for sharing this!! God Bless!!💚💙💚💙

Oct 28Reply

mandapanda83@edamerval thank you for sharing this!! This is something EVERY woman needs to know!! We CMV moms just got laws passed in Utah!!💙💚

Nov 05Reply

mandapanda83@edamerval My sentiments exactly!! It is so crazy that this is not known!! I have to educate docs and nurses!!! Thank you! I am in love with your closet, BTW!! Are you from the south??

Nov 05Reply

mandapanda83@edamerval My husband's family lives there! Your clothes remind me of Southern Chicks website, only reason I asked. Have a great day and I will continue to share your beautiful closet. Oh, how I wish I could afford that pink Aztec cardigan....it's so beautiful! I think I'll tell my hubby about it for Xmas!!😊

Nov 05Reply

mandapanda83@edamerval oops the geo print one....soooooo pretty...💕💕💕

Nov 05Reply

mandapanda83@edamerval Nice to meet u as well! Stay warm!!

Nov 05Reply

mandapanda83@vvllaguno345 Thank you very much for sharing this!! 💙💚💙💚

Nov 07Reply

vvllaguno345Np

Nov 07Reply

jrs_closetHad no idea!!!

Nov 09Reply

mandapanda83@jrs_closet Yep!! I didn't either and I'm/was a Medical Assistant!!! I even have to educate docs and nurses!!! Unbelievable!!! TY for the share!!!!💙💚💙💚

Nov 09Reply

mollys3I worked as an NICU RN for about a yr (thn went to peds trauma). Thank you so much for posting this. No doubt u have saved someone from a lot of pain and sadness!

Nov 21Reply

mandapanda83@mollys3 Thank you; I just got the chills! 😍 That is the whole purpose!! It is my mission in life to spread awareness and change laws!!! We got the first CMVHOW laws passed in Utah just a few months ago!! Woot woot!!!

Nov 21Reply

mollys3That's wonderful to hear!!!

Nov 21Reply

mandapanda83@rolli07 Jessica, thank you so much for sharing!!! You may have just saved a baby from permanent birth defects and/or death! God Bless!!!❤️❤️

Nov 23Reply

mandapanda83@rolli07 You are so right! I think I'm breaking Posh rules with this poster; but oh my goodness, how many WOMEN are on here?!?! We CMV mommies just got laws passed in Utah!!!!

Nov 23Reply

redumbrella@mandapanda83 party is happening now! You can enter on the host picks and congratulate! her name is justfabulous32

Dec 04Reply

mandapanda83@alimikiger oh man!! I passed out early last night....😭 We had an extremely long and hard day yesterday. I'm so sorry I missed her picks!!!!!

Dec 04Reply

redumbrella@mandapanda83 no worries! There is always tomorrow 😊😘

Dec 04Reply

mandapanda83@alimikiger yea, you're right!. Question for you, if I'm trying to become a SU, can I follow, share, buy and or sell to someone who has restricted items? Will it affect my chances??

Dec 04Reply

redumbrella@mandapanda83 better not, Posh doesn't approve that!😕

Dec 04Reply

mandapanda83@alimikiger See that's what I thought!!! I didn't mean share or buy their restricted items. What if they have maybe 2 items in their whole closet? I have been going through everyone's closet who follows me to see if they have any off limits items just to see if I can follow... What about if someone buys from me and I look through the buyers closet and she has a bunch of lotion? Do I cancel the sale??? Do I have to go through all of my followers' closets and unfollow if they have these items? So sorry about all the questions! Lol! I emailed posh days ago about this but haven't heard back... Thanks Allie! 😘

Dec 04Reply

redumbrella@mandapanda83 no, I think that's a lot of work! I will just not buy , not share and don't sell those items... that's about it. And if you see they have those items in their closet don't follow from now on!☺

Dec 04Reply

mandapanda83@alimikiger Thank you, that is what I thought!! I've been doing that lately and find these items a lot! I've been getting lots of followers who I can't follow back.. Oh well! Thanks again girl! 💖

Dec 04Reply

redumbrella@mandapanda83 are you sending them a letter for consideration to be a suggested user?

Dec 04Reply

mandapanda83@alimikiger I have send them 3 emails, 2 to ask to be considered a SU and co/host for a party. The last was to ask those questions since I'm trying my hardest to become one! I have only been on here since April and already sold 200 items, I bundle, with a shipping average of like 1.4 and 4.9 rating on almost 100 reviews. My closet isn't high end by any means, but I treat each and every customer like they just spent hundreds of dollars. Don't know what I'm doing wrong...

Dec 04Reply

redumbrella@mandapanda83 I think you're doing awesome! ☺ just be patient because there is a lot of people sending e-mails! But you'll get there!☺ I didn't send one yet... I started selling on june, July this year but I also have a job and go to school so I wasn't paying a lot of attention to the closet😕 now I started to share more, get involved with parties more and get to know the people around here better! And every day I love it more! ☺ I'm a Posher from the heart! Lol

Dec 04Reply

mandapanda83@alimikiger TY! I was doing the same! You can tell the difference from my original photos and my newer listings! I need to re-take those, lol!!! It really is a lot of work!! Lol! 😜

Dec 04Reply

mandapanda83@stephanilia Thank you very much for sharing this!! You might have saved a baby's life!!! 😘

Dec 11Reply

mandapanda83@stefanilea Thank you so much for sharing this!😘 You might have saved a baby's life!!! ❤️❤️

Dec 11Reply

sassbadgeryou are welcome @mandapanda83!

Dec 11Reply

mandapanda83@jujumama5 Good morning!! CMV IS NOT TESTED during pregnancy, can you believe that?!?! It is the leading cause of congenital birth defects with 1 in 150 born with it every year and we KNOW what causes it and how to prevent it; while 1 in 100 are born with Autism and we DONT know what causes it!! Everybody knows what that is!! Most babies show signs when born so they get a TORCH but Grey showed no signs at birth. He stopped moving twice before 37 weeks and I was hospitalized both times. He passed both biometric ultrasounds but they decided to get him out after the 2nd hospitalization. He screamed ANYTIME we put him on his back, @ 4 months he started prilosec, and @ 5 months we had a new baby! He started having vertical nystagmus at 6 weeks and I showed his doc. He got an EEG, all was normal... That was it! I knew something was wrong with him from the beginning! I continued to bring him in to the doc to demand an MRI and was met with "oh, it's you again" or "what is it now"!!!! At 4 months, the nystagmus turned into a positional change thing. I again requested an MRI and was shut down.. He was still not meeting ANY milestones and I continued to fight doc after doc.... Finally at 8 months his GI said lets get that MRI. Diagnosis Leukodystrophy.... We were devastated! We found the ULF second opinion program and flew to IL so the Leuko specialists from around the world viewed his 2 MRI's. This is at 13 months. I had to get his records from EVERY doc I took him to and it was noted in his chart, at that 4 month appt where I again requested a MRI, that I was over diagnosing and attention seeking mother!!!! Anyway, dr. Mario van der Knapp looked at his MRI and said it was not a Leuko but was CMV. I was a MA and had never heard of this! His white matter in his cerebellum is damaged. Today, he is 2.5 and just started sitting, in the W position, and started crawling!!! Yay!! We CMV moms just got the first prenatal and TOURCH screening law passed in Utah!!! We are working very hard to get all states on board!! Please share this!! Thanks so much! That is our story in a nutshell, lol! Whew!

Dec 15Reply

mandapanda83@alise28 Yes! Thank you!! Let's spread the word!! STOP CMV!!!!!🚫🚫🚫

Dec 18Reply

mandapanda83@alise28 Alise!!! I just saw this!!! Oh my goodness!! See, not a fan of doctors at all!!! They think they know everything! Well, Greyson has seen 2 pediatric orthopedists and both have told me different things! I'm so so tired of this!! He will be getting Botox injections on the 19th of February in ATL. I'm so excited!!! This is going to help him so much!! They have to put him under anesthesia but it won't be the first or the second time, so I'm not too concerned... It's always scary, but it is what's best for him! He will be getting over 50 shots!!! Did I send you that poem for you and your mom to read?? I forget... I'm so thankful I met you!! Are you on FB??? Love, Amanda 💘🐼

Jan 26Reply

mandapanda83@alise28 Well I'm glad for that doc!!! Yes, it is a lot!! I KNOW it will help!! Faith!! Even if you aren't on FB a, I'm still glad we can talk and keep in touch here!!! 💘🐼

Jan 27Reply

mandapanda83Awww, thank you Jen!💖 I'm sorry you are still not feeling better...sad face.. Do you mind helping me with these jeans???? 💘🐼 @ridinghood13

Jan 28Reply

mandapanda83Ok well, I appreciate it very much!!! 😘

Jan 28Reply

mandapanda83@ridinghood13 ⬆️⬆️⬆️⬆️

Jan 28Reply

reggies_closetThanks for this. I'll go to the site you posted and read more. I'm 30 weeks pregnant. This is our 5th and I have never heard of this before. Thank you.

Jan 30Reply

mandapanda83@reggies_closet Stacy, you are welcome! I am a CMA and I didn't even know about it! It's so crazy!! Congratulations on your 5th!! My goodness! You must have the patience of a Saint!

Jan 30Reply

mandapanda83@amandadub323

Feb 03Reply

mandapanda83@amandadub323 read what I wrote to jujumama

Feb 03Reply

amandadub323@mandapanda83 I feel embarrassed even mentioning my "story" You have been through so much! I just want to hug you and your little baby Grey! My husband and I want to start trying to start our own little family after my sister's wedding THIS month. You are doing an amazing thing trying to spread the word and get information out!! 💗💗💗

Feb 03Reply

mandapanda83@amandadub323 Hey now, don't do that!! Thank you very much!! May God bless with you with a beautiful and healthy child!!❤️❤️❤️❤️

Feb 03Reply

amandadub323@mandapanda83 thank you! Anything at all I can do to help, I will! Buying something or just being here to talk to! Whatever! Glad to have met you here!

Feb 03Reply

aelaleaGreat idea to spread the word. It's shocking so many people have no idea how dangerous this is. 👼

Feb 05Reply

mk4Thank you for posting this, I'm totally ignorant about what CVC is! And as the mother of four kids I'm surprised to know, nobody ever cared to mention this! I'm definitely educating my self about it now. God bless your precious little boy. 🙏

Feb 05Reply

mk4CMV 👆👆 I'm sorry 🙈🙈

Feb 05Reply

mandapanda83@mk4 Tell me about it!! I was a Medical Assistant and didn't know!!! I have to educate other healthcare professionals... SMH!! We CMV mommies got mandatory laws passed in Utah and are working on 3 more states!! It's just plain crazy!!!

Feb 05Reply

mk4Well kudos to you! Thank you for spreading the word. And good luck with the shots! 😊

Feb 05Reply

ali65@ali65 I see, how sad, will be in my prayers, it's wonderful that the medical field can help with these conditions, they r finding more uses for Botox, and not just a beauty thing anymore,,, now that's awesome!!!

Feb 05Reply

mandapanda83@ali65 Thank you Allison!! We pray these shots will be able to allow him to sit on his bum instead of in the W position!! Thank you for all of the shares!!! BTW, Greyson is considered a very mild case of congenital CMV.... We just lost 3 girls w/I the last 5 months... It's ridiculous!!!! Thank you for your prayers!! They are greatly appreciated!!! 💘💘💘💘💘💘🐼

Feb 05Reply

tippiejax😘you!

Feb 07Reply

mandapanda83@tippiejax ❤️U!!!!

Feb 07Reply

ccappello1Hey thanks for the knowledge. I too was born with 4 different blood disorders and have consistently had to explain and educate doctors. On a prior hospitalization I actually was so frustrated with the doctor that I lost complete respect and actually told him I lived with this for my 35 years and everything you know about my disease you learned in a text book. WE know our bodies and mothers know their children. That is 100% the truth!!! What does this mean about giving your toddler their own straw?? Can you explain? Ps Was reading your comments above, I saw you asked about following, sharing selling etc to people who violate rules and can this prevent you from getting chosen as a Hostess or SU, I was told NO WAY!!! That they do not police the site like that. As long as you are not sharing our buying those items. But we don't have the time too go through peoples 1000 items searching for that 1 promoting using pay, or that one post selling perfume,etc !! This info was given to me by queenmumm, and I trust her knowledge. Let me know what you think. She has the most amazing blog about allowable items etc!!! Thanks again for new knowledge!

Feb 08Reply

mandapanda83@ccappello1 Hi Christine! I'm sorry to hear that... I REALLY, REALLY dislike doctors.... I had to fight them for way too long! Now we have a Neurologist and Pediatric a ortho who are on board with everything I know Grey needs!! It's a wonderful feeling! About the straw, when you are pregnant don't use the same straw as your toddler. If we hadn't caught CMV in our life, our toddlers are the main carriers. CMV is transmitted through bodily fluids. The reason I don't put wash your hands after diaper changes is basically b/c we really all do that anyway. So giving your toddler their own straw and kissing them on the forehead, where the saliva is less likely to be; can prevent the spread of CMV. It presents just like a cold/flu. Now, the Queen is all knowledgable and I trust what she says, but I still don't follow or share from non posh compliant closets. I worked too hard for 9 months to achieve my 2 goals! An easy way for me to find all the bad stuff is searching their other categories. That's where all of the perfumes, undies, swimwear, and such are located! Hope that helps! Have a great day!! 💘🐼

Feb 08Reply

ccappello1Wow I don't have kids yet but I had no idea, what did you mean by your 2 goals? What were they?

Feb 09Reply

ccappello1Oh and where do you find the other category that you are talking about?

Feb 09Reply

daughter14@mandapanda83 💕sharing this 💜😊💕😊😊💕💜😊💕

Feb 09Reply

mandapanda83@daughter14 Thank you Susan!!!!!!!!😘😘😘😘😘😘😘😘😘💘💘🐼

Feb 09Reply

daughter14@mandapanda83 💕💕💕💕

Feb 09Reply

mandapanda83@ccappello1 Christine, we have passed mandatory laws in Utah and are now working on 3 more states!!! My 2 goals were to host a party and become an SU. I did both in 9 months! In a closet their is a category drop down to choose tops, purses, ect... Their is an Other category. This is where you find the bras, swimsuits, lotions, and all that stuff. Hope that helped!!! 💞💞🐼

Feb 09Reply

ccappello1Ok awesome!! Thanks, I had no idea, I've only been on the site since Aug 28th. It's all a learning process. I have already sent my emails for both as well and in the meantime I am focusing on more host picks and sharing as much as I can! I have gotten 5 HPs in the past 3 nights but I have 8 total so far! :)

Feb 09Reply

hollynoel25@mandapanda83 @alise28 This is both awesome & traumatic.. As life often presents itself. First, CONGRATS FOR STAYING ON THE ADVOCATE WAGON FOR NOT ONLY YOUR OWN BUT EVERY UNBORN BABY!👏👏👏👏 it's a rough ride, that wagon. Second; in many "Specialty " areas of diagnoses, many Drs & Nurses need educated by the parent, not because they're incompetent, but because they just don't see enough in their corner of the world of medicine. The specialists do. So, yes, we moms have a big job, protecting our kids & fighting for them, educating medical staff & in my case, the school staff as well. It can be frustrating that they all don't know, even more reason why we can never give up!! We become the first specialist our child sees. We educate ourselves on their symptoms, we watch them daily, we present their case to Dr after Dr, all the while being cast off as being attention seeking or paranoid. But we don't skip a beat, because we know. As I told my child's neurologist when she was 5 and he, when presented with a 2 ft high stack of medical journal documentation, asked me why I was fighting so hard to give my child this diagnoses of Tourette's Syndrome, I replied through the broken tears only we warrior moms could understand, " I'm not trying to give her this diagnoses, I'm trying desperately to rule it out. But every medical documentation I can find, supports the diagnoses !" While hers is not as physically devastating ( though rough physically too) the emotional, social, mental devastation has been life threatening & will always be. Whether it's her giving up or her inability to focus or slow the racing thoughts in her head causing another accident or a social failure or an inability to manage her life at an optimum level. But she's alive, she's beautiful, she's functional to her best, she's courageous, loving, empathetic & the most beautiful & determined soul I know.. As I know your precious children are as well. My thoughts & prayers are with you all, never give up the fight, take a respite now & then & take care of yourselves! 💃❤️💃✌️

Feb 15Reply

fashion_lady37Thank you for sharing 😉💕💕

Feb 16Reply

mandapanda83@fashion_lady37 Thank you!!!

Feb 16Reply

star_gazer99@mandapanda83 I have you & your son on my mind & in my prayers. 🙏❤️

Feb 16Reply

mandapanda83@star_gazer99 Thank you Louise!

Feb 16Reply

mandapanda83@mswk Thank you for sharing this!!! You just might have saved a life!!! ❤️❤️❤️

Feb 21Reply

jewelrymakerPrayers for your family 🙏

Feb 23Reply

tooprettyShared🙏💙💚💙

Feb 23Reply

mandapanda83@toopretty Thank you!!! You just might have saved a baby's life! God Bless!!!😘

Feb 23Reply

toopretty@mandapanda83 I hope so💕 I'll share again too 💕

Feb 23Reply

mandapanda83@toopretty Thank you!!!!!!!!!!

Feb 23Reply

mandapanda83@ohhdille Please read this and all comments. Especially the one to jujumama. I KNOW what you are going through, probably more than anyone on here. We don't doubt your son is ill at all. We really don't know what think b/c of your actions. Both Courtney @courtneyhaller and I have given you the absolute best advice. Get government assistance... It any reply, you don't even mention you will do this. Now, those programs will pay for his medicine and formula. My son did the same thing and was diagnosed with many things, Sandifer's being one. It is a GI reflux disease. We had to blow in our sons face to get him to start breathing. Today he is 2.5 and is still an infant. We think you tagging random ppl with that listing, basically begging for ppl to buy from you, is fishy... I was going to buy from you, but wanted to see how much for just the jewelry, you can't bundle anything through the offer button. You have to understand, we don't know you. Nor have you said anything about taking our advice. Please do these things we tell you!!! Stop worrying about Posh, how do you even have time? I had zero time to do anything but care for my screaming son... Use that time to go apply for any and all government assistance, please! I pray im wrong about this, I really do!!! Your family were in my prayers. Put it in His hands and do everything you can to get him seen by the specialists. Go to neurology, another GI, anybody who will help your son. God Bless you and your family. I will be praying.🙏🙏🙏🙏

Feb 25Reply

mandapanda83@oddhille I am very happy to read that! My son slept with one as well.... You most certainly can sell the jewelry on here. You bought the inventory, therefore it is yours. I'm so sorry it's come to this... I wanted to help you out!! That's just the kind of person I am, along with soooo many other women. That and the fact you didn't jump at the chance to sell to me, made me think something was fishy... I just went to your closet to share, but you blocked me. That's ok, I understand. I wish nothing but the best for you and your family. I will be praying that your husband gets the job!! I will be praying for God to give u strength through this horrible period in your life and am praying your kids get well and that your son gets the help he needs! My apologies! If you want help, I will share with my followers. Again, praying your family gets through this rough time. I was only comparing to give you an idea of what I went through, and my continuous fight for my son. We were giving you advice on other ways to make money while you were waiting for sales to come in, this I swear. When we were speaking about this under my listing, we never, ever mentioned your name. This is because if we are wrong, it wouldn't be known whom we were speaking about... We didn't want our doubts to cloud the minds of other women. Praying for you guys, and if u unblock me, I will share with my followers...

Feb 25Reply

nicolejc_poshwow..i dont have children, but i appreciate being made aware of this in case i ever plan to! not just for me but for my many friends that are having kids nowadays.. thanks! all the best to you and your fam! <3

Feb 25Reply

amberbensI'm praying for your son and your family.

Feb 26Reply

mandapanda83@amberbens Thank you Amber!!

Feb 26Reply

courtneyhallerHey Hun I haven't seen anything I Kinda fall off the face of earth for a moment LOL but everything you tag me in when I go to the page it says it's unavailable?? Now I can see this post and everything on your page but everything else you tag man is not coming up I hope she took our advice because her page is saying unavailable as well so I'm thinking I got blocked which to me just kind of shows me that I was probably right because I spoke nothing but kind words and gave her the best of advice I wouldn't sweat it honey.. Unfortunately we know there are some scammers out there and for the most part we are able to help all the new ones successfully but we can't win them all😔😘😊

Feb 26Reply

mandapanda83@courtneyhaller She blocked me.. She read our comments under my out of office sign...

Feb 26Reply

courtneyhallerI don't see your office sign anymore? How'd the conversation go? I'm glad she removed some listings I knew some still weren't real but with a picture off the net can't really prove nothing ... If I'm able to find a model in the shirt jewlery im selling then yes I do use it as cover but I also use the other three spots for pictures of the item that's actually in my closet so people can see for themselves how much wear and tear ect. Is on it. But she only use the Internet model pictures which anybody can post that and I'm sure confused many of the new girls they probably thought it was A brand-new purse shoes ect. But I'm glad to hear they took down some of her stuff hopefully now she will learn it's not like several ladies didn't try to help her there was many who tried. But enough about her how are you sorry I know I hadn't been on I ended up having a scentsy party online so for the past two weeks I was constantly working with the consultant I did really good though for my very first party😁 but I'm back and very far behind as you can see LOL so I'm off to go catch up on some of the stuff hope all is well

Feb 27Reply

designertrash_i have never heard of this what do you mean by own straw? your boy is so cute!!!

Mar 01Reply

mandapanda83@bunnysstyle Hi Ashley!! CMV lays dormant in our bodies like the chicken pox virus. 80-90% of the world's population has it. If you haven't gotten it, our toddlers are the main carriers. CMV is absolutely harmless unless infected while preggo... It is transmitted through bodily fluids. Don't share straws, wash hands after diaper changes, and kiss your toddler on the forehead, where saliva is most likely not to be. Thank you for the compliment!! He's our angel boy!!!😇😇😇

Mar 01Reply

designertrash_thanks for the awareness i hope to remember this when i get preggo

Mar 01Reply

mandapanda83@bunnysstyle You're welcome!!!!💘💘💘

Mar 03Reply

mandapanda83@gecko586

Mar 13Reply

gecko586@mandapanda83 thank you for the awareness...i appreciate it. I became a blood donor and could have saved a life thru stop blood cancer org. But I have an illness myself that prevented me from doing procedure for it. I was quite bummed but I still try to give back.. best wishes to you & your family

Mar 13Reply

mandapanda83@gecko586 You're welcome! I believe in paying it forward!!! I can't give blood either... Best wishes and have FUN trying!! teheeeee

Mar 13Reply

mandapanda83@blueskyaction 🙏🙏🙏🙏

Mar 15Reply

denalove@mandapanda83 praying for your son. Thanks 4 sharing!

Mar 23Reply

mandapanda83@denalove Thanks PFF! I'll try to get you back soon!😘😘😘

Mar 23Reply

denalove@mandapanda83 please don't feel the need to return, just wanna help when and where I can. :)

Mar 23Reply

mandapanda83@denalove Well, thank you very much! You sound like me! 😘😘😘

Mar 23Reply

iheartvspinkCan you please explain to me why it says something about a straw while you're pregnant? This is awful I saw your comment where it says something about your son having something wrong with his brain matter. So sad. 😢

Mar 27Reply

iheartvspinkNever mind I got curious and looked it up. 😉 That's scary as heck. Although I only have one son, that's scary it could've happened to me if I had another because when my son was a toddler he was constantly stealing my drinks. I'm sorry this happened to you. Your son is precious as heck.

Mar 27Reply

chemierreThank you so much for this post! I had never heard of this before and my husband and I are planning on trying for our second child soon- Apparently a LOT of women have never heard of this either! I'll def do my best to share this as often as possible! God bless you, you and your beautiful family are in my prayers 🙏❤️

Apr 13Reply

jag1981@mandapanda83 how is little man doing after his Botox? I know I asked about him right after, but is it still help?

Apr 18Reply

mandapanda83@jag1981 Jessica, if I haven't responded, I'm so sorry!!! My feed is always cray cray!! He is doing phenomenally!!! Are u on FB?? I have listings I can delete!!

Apr 18Reply

jag1981@mandapanda83 no, you answered then, I just wanted to make sure he was still doing well.

Apr 19Reply

mandapanda83@jag1981 Ok, good!!! He is doing great! We are just working on his new braces and gait trainer.... It's hard...

Apr 19Reply

jag1981@mandapanda83 I am on Facebook.

Apr 19Reply

mandapanda83@bellalize ❤️❤️❤️❤️

Apr 22Reply

mandapanda83@dawn520 Yes you are, opps!!! Good job!! I can introduce you to the community! I have lots of ppl to welcome you!!!

Apr 28Reply

jazsunshineOh cool! That would be awesome!

Apr 29Reply

mandapanda83@isabelmicque Thank you!!! God Bless you and yours!!! 😘🐼

May 22Reply

marykat💕 Ty so much for posting this! My granddaughter is 2 1/2, so I know my daughter will be getting ready for another👍🏻 I have told her over and over again about this!😘

May 24Reply

mandapanda83@marykat I am a CMV Warrior!! We are getting laws changed! My friend Dawn, in our handbag group, was the first CMV mommy that was there for me! We have been friends before I even thought about Posh!! She just recently got her closet up and I helped her clean it up, and now look at her! Anyway, you are welcome! I couldn't have a closet with no CMV awareness poster! 😘😘😘

May 24Reply

marykat😘💕👍🏻

May 24Reply

dotgallo@mandapanda83 , I never knew about this. 😟 Will share!

Jun 02Reply

mandapanda83@dotgallo Not many ppl do... It's sad!! I was a CMA and didn't know about it! Thanks for sharing! You might have just saved a baby's life!! Thank you so much! 😘😘😘

Jun 02Reply

dotgallo@mandapanda83 I just went to their page on Facebook, liked it and shared it. I hope it does save a life! 🙍😘

Jun 02Reply

mandapanda83@dotgallo Awesome!! Thank you so much!! It says in honor of Rachel. She was a twin and was the only girl affected and died 4-5 months ago... She was 8. Her mother created stopcmv.org. We are getting mandatory laws changed!! IL is already passed, now we have bills in the house for 2 more states! We are CMV warriors!

Jun 02Reply

dotgallo@mandapanda83 heartbreaking!! 😢💔

Jun 02Reply

jeanscenequeen@mandapanda83 Saw this post in answer to my earlier ? . (Plz read that whole post, though.) I shared the info on Pinterest and Facebook. My son was born in 1999 & I had never heard of this. Would like to chat about it further sometime, but gotta share denim!!! lol

Jun 05Reply

mandapanda83@jeanscenequeen Dawn, hi yes I was just about to get back with you! I would love to chat! Super busy at the moment... Are you on FB?

Jun 05Reply

jeanscenequeen@mandpanda83 yes in answer to FB, as Dawn King (in Atlanta). Will need to start getting on more regularly, squeezing it in w PMing. lol

Jun 05Reply

mandapanda83@jeanscenequeen Hi Dawn! Did you share me in the denim group??

Jun 05Reply

jeanscenequeen@mandapanda83 yes. They are supposed to be just regular shares aren't they? I asked Morgan & she said yes. I tagged u when I finished but yours was the only name that didn't go bold. I just copied it & tagged u again. Did i do something wrong?

Jun 06Reply

mandapanda83@jeanscenequeen Dawn, it's ok.. You share 10 denim and/or pants items from all who signed up that day.

Jun 06Reply

jeanscenequeen@mandapanda83 @drizzymizzylove So sorry! For some reason, I thought that I read somewhere that people do some, then post up to whose they did, then the next person takes over. Since I saw people putting up the initials of different people, I started on the next one after. I will share for everyone on the list next time. OOPS!

Jun 06Reply

kristikreationsGod bless your sweet boy!!!🙏🏻😘😘😘

Jun 22Reply

hautehinaWhat is the cause of CMV?? Like drink or do drugs during pregnancy?

Jul 09Reply

mandapanda83Hina, goodness no... If you have time read some of the comments especially the one to jujumama. It's a virus... @hsohailk

Jul 09Reply

hautehinaOh I am sorry I didn't know what CMV is now I read it now I realized that.. I am in CA I don't they ever tested me for that virus during pregnancy... My nephew is 3 years old he just started walking, started saying some words no one knows what is his problem all the test doctors took in last few years was normal.. I will recommend my sis in law for CMV test.. Hope Grey will be better soon my prayers are with you and him

Jul 09Reply

mandapanda83It's ok my friend! No they do not test for it, but we CMV warriors are getting laws passed! My friend, way before Posh, dawn520 has a granddaughter with it. She is her mother really! She is in our group! We met through a CMV support group. I would recommend getting a CT scan to see if he has any calcifications on his brain and an MRI to check for white matter damage. TY for your prayers, I will keep you and yours in mine! God Bless my friend! ❌⭕️🐼 @hsohailk

Jul 09Reply

gretzeli@mandapanda83 I so wish people were more aware of this, sometimes I feel hopeless when it comes to disease awareness.... People only talk or worry about the most common ones, my son has Type 1 diabetes and I know how painful it is for us as parents to live every day worrying about our children. We definitely need to create much more awareness and show the world how important is research and the understanding of diseases or conditions like this one. Many blessings to you and your family💕😘

Jul 15Reply

mandapanda83@gretzeli Thank you my friend!! This was one of the first listings I added!! I have raised awareness for so many women! I'm proud to say I'm a CMV Warrior!! My very good friend @dawn520 has a daughter with it as well! We met waaaay b4 Posh! We are changing laws!!!!! It's an amazing thing! I have this listed as one of my images on my party listing! Soooo much more exposure now!! When and if I can donate, I do so on the webpage listed!! Thank you!! ❌⭕️🐼

Jul 15Reply

jazsunshine@gretzeli many blessings to you and your son! I can't imagine living with diabetes as an adult much less a child! @mandapanda83 I order lots off of amazon and when I do I order through amazonsmile.com and it donates 5% to my selected cause which is stopcmv.org! Don't know if you knew that

Jul 15Reply

mandapanda83No I didn't!! Thank you my friend!!! @dawn520 @gretzeli Yes, I too am sorry to hear about your sons condition. I think God tests us, and we have all passed His test! I have a poem listed that uplifts me; posted in my closet. PFF, I want you to read it! ❌⭕️🐼

Jul 16Reply

lachester68Hi, I'm Lisa, & you have such a beautiful family. I read your story, & my grandbaby was recently diagnosed with spastic diplegic cerebral palsy. So all this is new to us. Anyway, God bless you and yours!

Aug 14Reply

cmc514Wow I had no idea!! 😕 I'm sorry to hear that. Did u find out while u were pregnant that u had CMV or did he contract it as an infant?!? Either way I'm sorry to hear it friend.

Aug 23Reply

mandapanda83Claire, 80-90% of our population has the virus laying dormant in our bodies. It presents like the cold or flu. Our toddlers are the main carriers and if you are preggers and get it, the fetus is the only one it is detrimental to... No, I wasn't tested, they don't do prenatal testing or a TORCH screen at birth. We cmv mommies are changing laws though! Woot! I think there are now 5 states that the laws have changed!! My son is mildly affected. Babies die everyday from the affects of this virus!

Aug 23Reply

mandapanda83@pre_pa514 ⤴️⤴️⤴️😘😘😘😘

Aug 23Reply

siouxshawnHow have I had two children and NEVER heard of this? I had fabulous doctors and top notch pre-natal care ( or so it seemed ) and no one ever mentioned this preventable disease to me? How can we prevent something without awareness?? Holy Hell.. This makes me mad. 😡😤😤 cont...

Sep 24Reply

siouxshawnMy daughter has a check up this week and I'm going to ask her pediatrician about spreading awareness to the moms that pass through , pregnant with their 2nd child. He's one of the top Pediatricians in Beverly Hills and wrote a fabulous book called Eat Sleep Poop ( a guide for babies first year ) he's writing a follow up and I hope he'll consider putting a warning about CMV in it. Bless you and your family❤️😘💨

Sep 24Reply

mandapanda83@siouxshawn Thank you Shawn! Remind me to talk to you tomorrow about this! I'm Soooo tired! Bless you and your family!!! 💞💞💞🐼💞💞💞

Sep 24Reply

mandapanda83Please tell me there isnt any drama in this group??? PM me please?? @sakshi9984

Sep 24Reply

mandapanda83ok, i would still like to talk to you. I value your opinion very much!!! @sakshi9984 I don't do drama so maybe i need to be out as well...

Sep 24Reply

mandapanda83@thesequinhanger Read this!!!! My son was affected and has CP.

Sep 27Reply

thesequinhangerI will check it out thank u

Sep 27Reply

tpmom@mandapanda83 This is a public service and valuable information. You are not to be chastised, this will help MANY women !

Oct 04Reply

mandapanda83Chastised?? I sure hope nobody would chastise me for trying to bring awareness to women about something so common, yet so unknown! @tpmom Ty my friend! That was my main purpose!

Oct 04Reply

tpmom@mandapanda83 What I meant is that you said this sort of thing isn't supported, so I hope Posh would see the good intent.

Oct 04Reply

mandapanda83Now you've got me waaay confused... When did I say that?? I've had this listing up since I joined.. We are allowed to have these types of listings.. Pff, you got me confused, LMBO! I'm sorry!!!!! @tpmom

Oct 04Reply

mandapanda83@_pink_ Thank you Ashley! It is a very good thing to know about! Thank you for your kind words and prayers!! 💞🐼💞

Oct 04Reply

stikeleathercl@mandapanda83 I was just recently diagnosed with CMV. It took the doctors 2 and a half months to figure out what was wrong. It was absolutely terrifying not knowing what was wrong and the fact the the doctors started mentioning cancer to me made it way worse. It's crazy how many people have this virus and never know that they do. It's so scary that it can affect babies the way that it does. I will definitely spread the word to help new moms. I am praying for your little boy and your family.

Oct 05Reply

mandapanda83@stikeleathercl

Oct 05Reply

mandapanda83@stikeleathercl Charly, yes it is really mind boggling that the docs do not even know or consider this when a woman is pregnant! You know 80-90% of the population already has it laying dormant in their bodies? I assume you weren't pregnant while diagnosed? That is great, but if you do; have your levels checked frequently. I'm sorry you are going through this! Thank you for your prayers as you will be in ours! God Bless! 💞🐼💞

Oct 05Reply

stikeleathercl@mandapanda83 It's definitely something that all women should be checked for while they are pregnant. Absolutely insane how many people have but don't know they do! I wasn't pregnant when they figured it out. I'm 23 and a pretty healthy person but my immune system couldn't handle the virus so it caused some major issues for me.

Oct 05Reply

mandapanda83@stikeleathercl Wow, yes I can see how it would cause you some issues.. It presents like a cold or flu. I was a CMA and didn't know! I thought I had the flu!! Please, if and when you get pregnant, keep tabs on it. If your immune system is compromised, being preggo will make it worse. It has been a pleasure to "meet" you and am happy that this awareness listing has brought so much info to women! Let's keep in touch please? Ty again for your prayers! Praying for you!

Oct 05Reply

stikeleathercl@mandapanda83 I have an ongoing battle with strep throat, mine came like a strep but got worse and worse. I ended up with 7 extremely swollen lymph nodes in my neck and head and huge completely white tonsils. I will definitely watch it when I start a family. Nice to meet you too, and yes let's keep in touch! Thank you for the prayers and I'll be thinking about your sweet boy!

Oct 05Reply

mandapanda83Thank you and you are in mine! Have a beautiful day! 😘😘😘🐼 @stikeleathercl

Oct 05Reply

flutter_buysWow! Sorry to hear that. I'm so glad you are spreading the word!! Who would have thought!! God Bless to you and your family! 😘💕

Oct 13Reply

jill555@mandapanda83 oh PFF looks like you might be back!💕💕🌹🌹just in time for my party Monday 🎉🎉🎊🎊 it would be great if you could tag your friends on Monday in the posts you see I have. Thanks. Hope all is well ! 😃😃

Oct 31Reply

mandapanda83I'm slowly coming back... I will for sure my friend!! If u need any help, lmk! Hope all is well with you! 😘😘😘💞💞💞🐼💞💞💞 @jill555

Oct 31Reply

jill555@mandapanda83 thanks! 💕

Oct 31Reply

mandapanda83@valorieann Any word on Mason??

Nov 11Reply

backporchdealz😘Hey sweetie. He goes back to Vanderbilt tomorrow for his 1st therapy treatment and praying this first one will give him some relief from the pain😔🙏🏻🙏🏻I'll alert everyone tomorrow around the time he's having his treatment so we can all pray for good results. How's your baby boy?? Anytime you want prayer requested, please come message me.. I'd be more than happy to tag others in the prayer group. All of the ladies on my list have asked to be on the tag list for anyone in need.

Nov 11Reply

blowmeuhkissI googled cmv but I don't really understand. At all. I'm a week away from 6 months pregnant and I have an 8 year old daughter already. What is this don't share a straw? We often share drinks.

Nov 19Reply

mandapanda83@blowmeuhkiss Hi, I'd be happy to tell you! I'll be back from taking my boys to school shortly!!

Nov 19Reply

mandapanda83@blowmeuhkiss Hi Veronica! Ok so the CMV virus lives in our bodies laying dormant. Most of the population has it. It's like a cold. Our toddlers are the main carriers. It's harmless to us, but detrimental to a growing fetus. Cont..

Nov 19Reply

mandapanda83@blowmeuhkiss It is transmitted through bodily fluids. When preggo don't share straws or utensils. Kiss them on their forehead where saliva is less likely to be. I would go to stopcmv.org That has the correct info!

Nov 19Reply

blowmeuhkiss@mandapanda83 scary! Thanks for the info. I've never heard of cmv and asked a few girlfriends last night. They also are unaware of this. You'd think ob/gyn's would want to make mother's aware, esp those with children already.

Nov 19Reply

mandapanda83@elizabeth3374 We are changing laws my friend!!! CMV Warrior!!!

Dec 02Reply

footcandyThanks for sharing this info! @heidirose4

Dec 06Reply

mandapanda83You are so welcome my friend!!! xo @footcandy @heidirose4

Dec 06Reply

mandapanda83@dawn520 😘😘😘😘😘😘

Jan 21Reply

mandapanda83@stunning_29 My awareness listing. Pls share? Look at my party listing!

Jan 21Reply

stunning_29@mandapanda83 of course I'll share! ! Xo & I know! I'm soooooo excited for you about your party, I think I made my intrusion lol on it, if not .. I WILL NOW! That's awesome I'm so happy for you! , u are beautiful! U should change ur profile pic, don't hide that pretty face :))❤😘 yes mam we do have alot in common, I'm so glad we met!! Ok off to sharing this honey:) xoxoxo

Jan 21Reply

mandapanda83Me too!!!! Very glad!! @stunning_29

Jan 21Reply

t_ms_sinceritySo nice of you to inform others!💛💛💛

Feb 09Reply

fourwildhorses@mandapanda83 God Bless you and your little one 🙏🏻 I also have a special needs child. Mine is on the autistic spectrum. We are so much stronger than we ever thought we could be. Love to you and your family 💖💕💖

Mar 18Reply

mandapanda83@songae I think it's near the top.. Next month will be my 2 year anniversary and I was talking about this since the beginning.. I'm going through a bad time but am strong! What you will read lets you know how I became that woman.. I pray this surgery works!! I can't do proper therapies w/ Grey w/ my back the way it is!

Mar 18Reply

songaeAmanda I was so distracted earlier... my 3 year old having meltdown while eating dinner ....so if my earlier response doesn't make sense please excuse me... I finally found time to research about CMV online!.

Mar 19Reply

songae... and this is an amazing found to me....I had 3 different OBs in three different cities while carrying my son but not one mentioned about the disease! he had some signs that was questionable early on but even then no one ever mentioned about CMV. and to me it is mind boggling how it is not mandatory in every states!!!! only in Utah! I am thankful to find this info for myself and all others.

Mar 19Reply

songaeyou have a lot on your hand but I am glad baby Grey has mother like you who is strong enough to fight not give up! doctors don't know it all...what you are doing will save so many mothers and unborn children!!!

Mar 19Reply

songaeI prey for your surgery and baby Grey and all the care and supports you two need. List many as you can before the big day....I will share your closets often now ...I want you to make many sales as possible before your surgery but please don't share back I really mean it! I am very proud to be one of your panda🐼 😍 😘

Mar 19Reply

mandapanda83@angelomine06 read what I wrote to jujumama... That is my story in a nutshell..

Jun 01Reply

ashleynmc84Thank you for sharing this. I had no idea what CMV was and just read up about it. I'm a childcare worker at my church and after reading this I'm thinking about how I can spread awareness or do things a little differently if we need to. Thanks!

Jun 10Reply

mandapanda83@ashleynmc84 Hi Ashley!! I love getting messages like this!!! I've educated not just one, but the ppl you tell!!! I am a CMV Warrior and we are getting mandatory prenatal testing and TORCH screenings at birth!!! If we'd had that screening, we would have known instead of me fighting MANY docs, finally getting the MRI I'd been asking for, for months, getting a fatal brain disease diagnosis and then fighting that!! Ridiculous!!! #stopcmv

Jun 11Reply

goldenpolkadot🌹🙏🏼🌹 sharing!!!!

Jul 12Reply

harleysshoppingSending prayers and hugs for your son and your family. Hopefully one day scientists and Dr's will be be able to find a cure for this birth defect/disease and other ones that there is no cures for yet. God Bless ya'll's hearts.

Aug 15Reply

sheer_fabulousI'm CMV- so when I donate blood it could be helping newborns with this

Aug 26Reply

fablootI have stumbled upon this stopping by to cheer your recent HP. I had no knowledge of this! I consider myself an educated woman, I have a child, and yet I have never before seen this! I have heard of CMV but in infants after delivery, not while in-vivo. This is an outrageous tragedy that is preventable! Thank you so very much for enlightening me! I will gladly share. Prayers to you and precious Grey! God bless.

Oct 11Reply

khloe1113WoW.....ur in my prayers.

Nov 05Reply

angelaswear@mandapanda83 I'm truly touched and I'm changed after reading this!! God has a special place for woman like you!! I'm sharing and I'll share on FB if you'll lol how to find you on there!! Bless Bless Bless your sweet precious baby

Mar 04Reply

mandapanda83@angelaenigro Aww, thank you so much for that message! I'd love to connect on fb!! I'm Amanda Barnes! I have a green CP profile pic as March is CP Awareness month!!

Mar 06Reply

angelaenigro@mandapanda83 absolutely I will search you on FB! My name is the same on here ❣️❣️❣️

Mar 06Reply

angelaenigro@mandapanda83 omg I can't find you on FB I tried everything LOL try searching me Angela Nigro East Islip, NY! Apparently there are a lot of people with you same name 😂 let me know once you find me so we can connect up on FB!❣️

Mar 06Reply

Mar 07Reply

1pickyshopper@mandapanda83 I'm so glad your back, how is your little one doing, did casting the legs help. I hope your doing well😀

Oct 16Reply

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