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This post was originally created to Spreading AutoImmune Awareness & Love! 🎗️ Autoimmune Posh Support — Post Your Story & Chat with Others About Theirs 🎗️ Follow Me on Instagram: HerRoyal__E (double underscore)

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111 Comments

e_l_e_a_n_o_r Feel free to tag @pittypatsappare @j_dcollectibles @a_mermaid_life @sheryl7872 @psjohnsen @ruralurbanite

Apr 08Reply

a_mermaid_life 💕💕💕💕

Apr 08Reply

psjohnsen 💕💕💕

Apr 08Reply

j_dcollectibles @e_l_e_a_n_o_r Thank you sooo much for setting this up... not everyone understands those of us with autoimmune disorders... what a beautiful way to connect and support each other @ruralurbanite @a_mermaid_life @psjohnsen @pittypatsappare @sheryl7872 💕💕💕 big hugs to you all!!! and Thanks a million for supporting me tonight!! You are all the BEST!!

Apr 08Reply

psjohnsen @j_dcollectibles 💕💕💕

Apr 08Reply

sheryl7872 @e_l_e_a_n_o_r Thank you so much all of you Beautiful ladies!!! 💕💕💕 💝💜💙💚💖

Apr 08Reply

heather_on_fire @j_dcollectibles I really appreciate you sharing on live and also demonstrating that “it can be done” doing live sales, as long as you do what you need to take care of yourself! And @e_l_e_a_n_o_r thank you for making sure we all stay connected. And thank you @a_mermaid_life, @psjohnsen, @pittypatsappare, @sheryl7872 for sharing too!!

Apr 08Reply

heather_on_fire If anyone wants me to reply something in here, please do tag me. I will try to keep up, but sometimes as these threads get long I will start missing stuff! Plus sometimes I have to take breaks, especially when papers and exams are due!💕💕💕💕💕

Apr 08Reply

psjohnsen @ruralurbanite 💕💕💕I still need to do my taxes, ugh!! ☹️

Apr 08Reply

thatmamalife @j_dcollectibles 💞💞💞💞

Apr 10Reply

msheat I’ve never seen anything like this kind of support. I was diagnosed with disorder 1 1/2 yrs ago. Wondering if I can even do lives due to pain, fatigue etc. I could sure use some support from anyone who fights this disease.

Apr 10Reply

sheryl7872 @msheat Always love & support to you and our sisters who are in pain daily!! We do understand!! 🥰💔💝

Apr 12Reply

dlsiscoe I feel crappy today. malaise and joint pain. but nothing new.

Apr 12Reply

deedelights1 This is beautiful!

Apr 12Reply

labelsforlocals @dlsiscoe i hope you have a beautiful day, friend! I’m sorry you feel this way. You hang in there! 🙏

Apr 13Reply

e_l_e_a_n_o_r @ruralurbanite 🤗

Apr 19Reply

e_l_e_a_n_o_r @msheat lots of love from everyone here!!!

Apr 19Reply

e_l_e_a_n_o_r @dlsiscoe keep going!!! Get well soon Deb!

Apr 19Reply

e_l_e_a_n_o_r @deedelights1 ♥️

Apr 19Reply

msheat @e_l_e_a_n_o_r Hi, thank you for reaching out and helping all of us! 💕💕💕Much love to you and everyone else 🌺🌺🌺🌺🌺 I did do a posh and coffee last weekend but thinking of going to another one…because brain fog? Ugh lol

Apr 19Reply

jenmuniz75 @j_dcollectibles I agree! This is amazing 😻 love all of the support ladies !! 😍😍

Apr 19Reply

j_dcollectibles @e_l_e_a_n_o_r Yesss I agree!!! Thank you El for setting this up... I am so sorry I have missed so many comments on this listing but please know I'm here for you all!!! Every day is different for those of us battling autoimmune disorders... but please know I am sending you all some positivity today!! Lots of love and hugs to you all!!! 💕💕💕 @msheat @deedelights1 @dlsiscoe @ruralurbanite @labelsforlocals @sheryl7872 @trinityrodri603 @psjohnsen @a_mermaid_life @pittypatsappare

Apr 19Reply

j_dcollectibles @msheat yayyyy I'm so happy you did the Posh n Coffee!!! So excited for you to get approved for lives soon!! Yes I would def do another if you can... I have always learned sooo much!! Also, @sheryl7872 had the idea to do a Posh Q&A tomorrow... so we are going to go live together (me live and her on the phone) at 4pm EST. Please join if you can and hopefully we can help answer some questions... ;) hugs!!! sooo happy for you!!

Apr 19Reply

pittypatsappare just got approved for lives. Hope I can do it. Medicine for my RA is back orfered due to manufacturer shortage. Suppose to come in May. Hope I don't have to change medication.

Apr 19Reply

j_dcollectibles @pittypatsappare oh yayyyyy CONGRATULATIONS!!!! I'm soooo excited for you!! Yes definitely take it slow... maybe just do an hour or 2 show to start... ugh I'm so sorry to hear about your medication... I hope they get it in soon. Is there anything they can give you in the meantime? Being without medication is no fun.

Apr 19Reply

j_dcollectibles @pittypatsappare please let me know if there is any way I can help you with your first live show... I would be happy to moderate or help in any way that I can :) Just let me know :)

Apr 19Reply

pittypatsappare @j_dcollectibles thanks. I'm going to do my tray and get my measurements down first. Plan to do one in May.

Apr 19Reply

djlifemktg Yes I have fribromyalgia chronic fatigue and Ebstein Bar

Apr 20Reply

shopluliscloset Wow! This is so cool! I didn’t know you had this! ❤️

Apr 20Reply

fluffnstuff78 @e_l_e_a_n_o_r Love this post! I also have an autoimmune disease. I have Sjögren’s syndrome & Mixed connective tissue disease. Love that y’all doing this! 💜💜💜💜💜

Apr 21Reply

e_l_e_a_n_o_r @fluffnstuff78 awwwww thank you 🥰 that means alot! Hope your doing okay love 🤗

Apr 21Reply

e_l_e_a_n_o_r @djlifemktg I’m sorry!!!! I had ebv before my ra!

Apr 21Reply

djlifemktg @e_l_e_a_n_o_r hey there. I’m DJ. Nice to meet you. I’m new on PM. I have a lot to learn and will join you and the others for the Q&As. Please visit my closet and say hi. I got laid off in 2009 and went on disability. I’m excited to the prospects and of what I could do on this job platform. I hope you are feeling well today. One day at a time 😊

Apr 21Reply

bargainemporium hello I would like to join ur group

Apr 22Reply

jodell143 Wonderful thing you are doing!💗

Apr 23Reply

jandalynn I'm not sure if I have an autoimmune disease or not but I feel like my implants are causing my health symptoms. I am scheduled to have them taken out soon

Apr 23Reply

a_mermaid_life @szuminsky Welcome to the group!

Apr 23Reply

a_mermaid_life Hi ladies…just a quick question for my auto-immune ladies. I really struggle after I “overdo” it…like after a long show of standing. I’m just wondering what you all do after or before to prepare or recover from overdoing it? I try and rest, but feel so “revved up” after and struggle to relax. Any ideas? @j_dcollectibles @e_l_e_a_n_o_r @szuminsky

Apr 23Reply

j_dcollectibles @a_mermaid_life I just read your comment... and I feel like you read my mind lol... I totally feel the same way after my shows... it seriously took me so long to relax after... which is why I wanted to apologize for not staying longer for your show... I will definitely message you next time I plan a show to make sure they are not back to back. I haven't been able to figure that out yet... I think a 2-3 hour show may have to be my max?? I tried resting a bit before mine this time,

Apr 23Reply

a_mermaid_life @fluffnstuff78 Hi friend! I also have Sjogren’s and also lupus as well IC. I feel your pain. Are you on any specific meds to help with Sjogren’s? (I take plaquenil/Benlysta…for both lupus and Sjogren’s.)

Apr 23Reply

j_dcollectibles @a_mermaid_life but that didn't really seem to make a difference. and even when I finally crashed and went to bed, it took me a while for my body to relax and go to sleep... I was maybe thinking shorter shows a couple times a week instead of one long show a week?? I don't know... but @e_l_e_a_n_o_r and @szuminsky and if any others have any words of wisdom I would love it too!!! But seriously congrats on your show last night!!! you totally sold a lot!! :) super happy for you!!! :)

Apr 23Reply

j_dcollectibles and @szuminsky welcome to the group!!! it is so wonderful to meet you :)

Apr 23Reply

j_dcollectibles @bargainemporium hello!!! Yesss please!!! Thank you so much for supporting my show last night!!! soooo wonderful to meet you!!! Welcome to the group!!! Soooo happy to have you :)

Apr 23Reply

a_mermaid_life @j_dcollectibles oh @j_dcollectibles please don’t apologize! 🙏 I am thinking shorter shows may be the answer, but the crazy thing is I feel so good during them, and don’t want to stop. 😆 I just love these women so much. It’s just strange that the revved up feeling takes so long to go away, that sometimes I can’t even sleep.

Apr 23Reply

a_mermaid_life @j_dcollectibles And then that creates more problems. I can use my normal physical helps (massage/meds/heating pad), but the revved up feeling is killing me. (I was up until 3:30 am, be sure I couldn’t turn off.) And it’s just the days I have shows. So weird. 🤔

Apr 23Reply

j_dcollectibles @djlifemktg wow DJ I didn't realize you were battling with so much too!! I was just diagnosed with Fibromyalgia about 7 years ago... and the last 4 years it has gotten much worse... any words of wisdom would be so welcome :) So happy to have you here with us!!! we all need all the support we can get :)

Apr 23Reply

j_dcollectibles @jodell143 awww you are the sweetest thing!!! @e_l_e_a_n_o_r had the idea... and there are soooo many of us on Posh dealing with a variety of health issues... it is just a good place where we can all help and support each other :) we all need as much love and support as we can get!! Thank you soooo much for joining my show yesterday and for all of your support!!! I truly appreciate you sooo much and am so happy to have you here with is too!! :)

Apr 23Reply

j_dcollectibles @a_mermaid_life that is so funny that you said all of that, because I have noticed it is just the days I do the shows too... I feel like we are both soooo into the shows and love them so much that we don't recognize when our body is telling us it is time to stop lol... they are just so much fun and, yes, I agree I love everyone so much too 💕 I'm struggling to find a balance that works with my new Posh Adventures within my health limitations... one fellow posher said she stands for 2 hours and..

Apr 23Reply

j_dcollectibles @a_mermaid_life then she sits for a bit and shows some items seated so she can rest and then gets back up... I may try that too... ?? but like I said I'm a work in progress too. I did buy a planner to help me keep better track of my weekly schedule and planning in time for show prep and packing after, etc... but again, that is a work in progress. If you find anything that works for you, please let me know and I will do the same :)

Apr 23Reply

szuminsky @a_mermaid_life I had no ideas groups like this existed on Poshmark! Thanks for the tag! And I feel you. I’ve spent all day cleaning and I know I’m going to feel it tomorrow. When I do that I always ice extra at night, use my air compression leg things, and use a heating pad on my lower back to try to mitigate things a bit. Sometimes it helps more than others. 🙃

Apr 23Reply

a_mermaid_life @j_dcollectibles Yessss!!! We are speaking the same language! I like the stand/sit idea. But it’s so hard, as you know to sit. But it’s worth a shot. I also work full-time and so I have such a limited window to do shows. As I’m wayyy to tired at night after work.

Apr 23Reply

a_mermaid_life @j_dcollectibles And don’t really have time to prep/have shows on weekdays, but I’m going to try and see what I can change, because I need to change something. Thanks for the suggestions friend!! I hope you rest and get feeling better soon. 💕💕

Apr 23Reply

e_l_e_a_n_o_r @jodell143 ❤️

Apr 25Reply

e_l_e_a_n_o_r @djlifemktg aww your words are inspiring to me! ♥️

Apr 25Reply

e_l_e_a_n_o_r @bargainemporium sure feel free to chat w/us :/)

Apr 25Reply

e_l_e_a_n_o_r @jandalynn feel better soon!

Apr 25Reply

e_l_e_a_n_o_r @j_dcollectibles you guys are awesome thank you for helping with this @a_mermaid_life

Apr 25Reply

e_l_e_a_n_o_r @szuminsky oh girl keep trying keep going is what I tell myself and then I’m like ughhhh I gotta rest to get rid of this lolololol…

Apr 25Reply

bargainemporium @e_l_e_a_n_o_r how is everyone doing today

Apr 25Reply

a_mermaid_life @e_l_e_a_n_o_r I’m so happy to be part of this group of supportive women. You are all amazing! 💕💕

Apr 25Reply

lwschlprncss LOVE LOVE LOVE that y’all created this!! SO many people do not understand!! Just had the 10th anniversary of being wheelchair dependent…never realized how much I’d miss walking!!

Apr 28Reply

zanymich Hi all! I wondered if I could make a request to help support my/possibly your PFF, mishmash88. She is going in on Tuesday for surgery (partial removal of her thyroid) and her medical bills are piling up. If you could share items in her closet whenever you think about it, I know she would be so grateful! Thank you! I didn’t want to tag her, was hoping to be sneaky! lol!

Apr 28Reply

j_dcollectibles @lwschlprncss awww @e_l_e_a_n_o_r is the mastermind in creating it... I just happen to mention something in one of my shows and then she took my tiny comment and created this... she is awesome!! Wow, my friend, I didn't realize you were dealing with so much too... yess it is sooo true that so many people just don't understand... and you have been dealing with so much for so long, and yet in the lives you just keep encouraging us all to keep going!! You truly are a special person!!

May 02Reply

j_dcollectibles @lwschlprncss And we are truly blessed to have you in our support group!! Positive people like you make all the difference... and knowing someone like you who truly understands definitely helps!! Thank you for joining us and for just being you!! :) Sending lots of hugs your way!!

May 02Reply

j_dcollectibles @zanymich yesss ABSOLUTELY!!! Definitely will do!! Will keep her in my prayers too. Thanks for letting us know. Happy to support our PFF's :)

May 02Reply

j_dcollectibles @bargainemporium Heyyy it was so much fun hanging out with you today in both of Rachal's shows!! And soooo wonderful to have such a great person like you in our support group!! Truly means so much :)

May 02Reply

bargainemporium @j_dcollectibles yes was so fun to hang out with you today 😊 I am glad I am with such a wonderful group of friends 😁

May 02Reply

lwschlprncss @j_dcollectibles I actually walked into a surgery that was supposed to restore quality of life and should have made my pain manageable; instead, I woke up paralyzed and didn’t realize it was permanent until it was too late! Every tiny thing we take for granted in life is now something I celebrate and/or miss daily!!

May 02Reply

lwschlprncss But as hard as it’s been at times, I know it could always be MUCH worse so I do my best to never complain! I never cease to be amazed and awed by the incredible women (and men) I’ve met on Posh, especially of late! 🥰

May 02Reply

j_dcollectibles @lwschlprncss oh my I'm soooo sorry to hear that!! That is horrible!! My dad had something similar happen to him after his back surgery which severely affected his ability to walk post operatively... yessss what you said is soooo true... I have learned not to take anything for granted too. I love what you said though... and I try to remember this every day... I'm so thankful to God for the things I have and try so hard not to complain even though I have plenty I could complain about for sure lol

May 02Reply

j_dcollectibles @lwschlprncss having a positive attitude like you truly helps your health so much too!! I try to find big and even little things I can be thankful for each day... that really helps!! Yes truly a beautiful group of people I have met here on Posh... and very supportive!! Truly means a lot!! 💕 Sending lots of hugs, my friend!! Always here for you :)

May 02Reply

calltherain @msheat Hi! I have been dealing w AI for about 35 years. if you would like to email...I can share what has helped and what doesn't. My daughter is worse than I am and it is heartbreaking to watch her...she is almost 30. And not interested sometimes in acting on what Mom says...but it is hard hard hard to regain some balance and then maintain.

May 02Reply

calltherain @fluffnstuff78 my daughter just diagnosed w sjogrens (sp?) add to all her other AI issues. Although relief to have some answers. anything u might think helpful?

May 02Reply

calltherain @a_mermaid_life Being hyper creative & living wHyper creative & AI conditions, possibly bipolar it is vital to learn how to move from sympathetic into a para- sympathetic state for your body/mind to relax. generally, I have to take the edge off after a particularly intense interaction or activity w activity that is comforting as well as very tactile hands-on. Groom a pet, garden/water plants, sort/clean something, moderate walk/dance, art activity, play instrument.

May 02Reply

calltherain @a_mermaid_life deep breath w slow body movement while doing the activity. i.e. so elongate that stretch to reach for the plant Etc. whatever you do don't do blue light or TV, loud harsh music. Soothing/comforting but active activity that allows brain/body to slowly ratchet down. THEN

May 02Reply

calltherain @a_mermaid_life sit/lie down😄keep deep breathing. Soft meditative music or rhythm. keep slow stretching, only holding the stretch for 4-5 sec. If y can 'swim' move in water DO IT & then dry sauna. Lots of lemon, decaf green tea water before& after activity. Keep sugar caffeine & alcohol to bare min bef & after. Likewise w histamine/reactive imflammatory foods. Bef & aft eat foods that fight increased inflammation. i can gv u a list

May 02Reply

calltherain @a_mermaid_life Cranial Sacral therapy is VERY effective w pain as is lymph gland drainage. Also, endocrine & gastrointestinal detox. After done the wind down, take a warm bath and read something soothing, slower art activity, mellow music and simple arithmetic problems for continued brain wave shift . read more on shifting body to parasympathetic to find more activities that help do that.

May 02Reply

calltherain @a_mermaid_life Before a demanding activity (sometimes we don't have a choice, we hit a trigger & we're in an intense situation) but if you've a choice before you engage in something that's taxing, make sure you have something non-taxing beforehand. something easy, not demanding on the body or brain.

May 02Reply

calltherain @a_mermaid_life avoid being rushed! Do a bit of deep slow breathing/movement for 15 min alone & in quiet uplifting location (look at favorite painting, for instance). & as I mentioned watch your diet/fluids. discipline your mind to focus on what you're doing and only that. most of all be nice to yourself🌧🌈💖

May 02Reply

calltherain @a_mermaid_life well, I know that was a lot. I just stuffed into a few comment paragraphs what I've learned over 35 years. I probably stressed you. I am sorry. I also have several essential oils that I use for various AI issues and wellness. let me know if you're interested.

May 02Reply

calltherain hey everybody after dealing w AI fibromyalgia myofascial for 35+ years, I'm finding it helpful to identify patterns &Cycles (I should've learned this by now but I'm just didn't want to do it.) I think they're fairly predictable, at least it seems like that for me. Identifying them should help me be more prepared for the times when I hit a brick wall. or the brain fog just dumps me into a zombie Zone.

May 02Reply

calltherain I really have found cranial sacral therapy to help relieve the pain, & sometimes repair tissue, along w careful diet & slow slow movement 'exercises', esp in water to move toxins. but probably what we all could use more than anything are correcting all the wrong messages that we or others give us about ourselves. I do trauma counseling now... it's probably coming through😄

May 02Reply

e_l_e_a_n_o_r @calltherain oh my goodness a lot of love and positivity goes out to you!

May 07Reply

a_mermaid_life @calltherain hi!! I’m sorry, I just saw your comments. Thank you for all the suggestions and comments. I am going to try many of your suggestions, as I have been in a really bad flare for like 2 weeks. Thank you so much for your kindness. 💕💕 I hope you are doing well too.

May 07Reply

shopwithnv I have had fibromyalgia since 2009 ❤️❤️

May 08Reply

e_l_e_a_n_o_r @nvphotography much love to you!!!

May 11Reply

bargainsnbrands @j_dcollectibles @e_l_e_a_n_o_r Thank you for creating this amazing group! Such a beautiful act of kindness. Hugs 🤗 to everyone in this group!

May 12Reply

e_l_e_a_n_o_r @bargainsnbrands love your picture girl

May 12Reply

bargainsnbrands @e_l_e_a_n_o_r You are so sweet! Thank you.

May 13Reply

pathtoparadise @metamorphoasis 🩵

May 14Reply

zanymich I’m not sure if this is where we are supposed to post about our auto immune disease. I have vitiligo which is tough to deal with when you love being outside, gardening or at the beach. Most people think I was burned but it’s not that, just a loss of pigmentation. Makes me very self conscience about it, especially in the summer. If anyone else has this, I can point you in the direction of a wonderful monthly newsletter.

May 17Reply

e_l_e_a_n_o_r @hiposhboyteen

May 18Reply

poutypants Thank you for inviting me! 💕💕💕

May 24Reply

sheryl7872 @zanymich 💝💝💝

May 25Reply

cristinem88 Thank you for the support!! I have an autoimmune disease Lupus and suffering as I write this. Praying for everyone that has autoimmune diseases! I feel your pain #lupuswarrior #supprot #poshlove

May 26Reply

mamabear0012 I come across this from your show. my 11 year old has psoriasis and psoriatic arthritis. she was just diagnosed two months ago. it is so much for her to deal with and it seems so unfair that people have conditions where their body attacks itself. I have so much compassion for those that have autoimmune issues. please keep my daughter in your prayers of you pray and we will pray for everyone here as well

May 28Reply

sheryl7872 @calltherain 💝💝💝

May 29Reply

sheryl7872 @zanymich You are Beautiful Tracey inside and out!! Love you girl!! Thanks for hanging out with me & supporting me yesterday!! I appreciate you. 💝

May 29Reply

zanymich @sheryl7872 I’m sorry I couldn’t stay longer, had a million things to do and have only accomplished two of them!! Love you, girl and so nice to meet your friend, Jenny!! 💜💜💜💜

May 29Reply

calltherain @sheryl7872 hello, thank you for the encouragement. I haven't been back to our page in a couple weeks cuz I had a flare doing better today. thank you god. blessings on your Memorial Day.

May 29Reply

calltherain @srgolder1969 oh hello, I will. my daughter has suffered since birth. so many difficult physical conditions of which there are sometimes no diagnosis sometimes nothing to be done for them. at this point (29) she has suffered PTSD due to Needles and people not monitoring the pain medication during just routine Dental services. as she is sensitive to medications. I will pray.

May 29Reply

calltherain @a_mermaid_life hi I'm sorry I'm just getting back to you. I was so concerned I had overwhelmed you. I just get going and I'm flooded with all the years and all the attempts to do something. I had a flare right after I wrote doing better today thank you God praying for all of you thank you that you let me know it didn't Crush you. LOL🙏🏼🙏🏼🙏🏼🌧🌈💖

May 29Reply

calltherain @e_l_e_a_n_o_r hello dear girl. I love looking at the things you post, what you're doing. I hope you're not overdoing. 😯💖I had a flare right after I posted. I'm so glad it didn't overwhelm everyone. once the Sun comes out my gauges issues being a fair redhead w rosacea compounds.so that has been challenging to deal w as go into summer. if I'm honest I'm just tired of it all & I don't know where I'm not praying right. if that makes any sense. thanks thanks everyone, blessings on your day, rain

May 29Reply

calltherain @lwschlprncss I just read your posts on AI page. my heart breaks for that to have occurred when you were expecting such a different outcome. I just don't know sometimes about life. I'm wondering and hoping for you and praying for you that maybe there new discoveries and Technology. I just watched a guy on news he had surgery to reconnect nerve messages and he's walking.

May 29Reply

wordlovesculpt This is a wonderful idea. Sending love and light days to you all ❤️🥰

May 29Reply

sheryl7872 @srgolder1969 I will definitely keep you and your daughter in my prayers!! 💝

May 30Reply

mariposacloset Hi Ladies! 🙋🏼‍♀️ Nice to know we are not alone. I have Lupus (and several secondary autoimmune diagnosis that are umbrella’d by Lupus).🫶🏻

Jun 10Reply

e_l_e_a_n_o_r @cinnabuns blocked where?

Jun 18Reply

holsteinbrat Nice to see a support communication for AI here. I have Aplastic Anemia, which is quite rare I am told. Mayo clinic was not even terribly familiar with treating it. It is not low iron as anemia is normally thought of. My body destroys red blood cells almost faster than it can replenish them. All components of your blood are affected.

Jun 27Reply

holsteinbrat The rarity of the disease caused me to initially be misdiagnosed and treated with a cancer drug. This caused a severe lack of oxygen to my bones...and I ended up with bone dying in all of my major joints. They will all have to be replaced one at a time when I can't take the pain anymore.

Jun 27Reply

holsteinbrat When you go through something that turns your life upside down you really look at things differently. I am so thankful for things that are so easy to take for granted and I hadn't really thought a lot about previously. Staying as positive as possible is huge. Negativity, depression and pain are so closely connected that positivity is a huge help for me. I like to think others find the same is true for them even if our diagnoses are not the same. 🙂

Jun 27Reply