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queenposhnb
queenposhnb
Updated May 06
queenposhnb
queenposhnb
Updated May 06

MS SUPPORT POSHER- Please ❤️ and Share!

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In 2014, after giving birth to my son,I had brain surgery to remove a non-benign brain tumor (meningioma). Then in early 2015, I was diagnosed with Relapsing Remitting Multiple Sclerosis. My most frequent symptoms are: cognitive impairment (or “cog fog”), leg pain & mood swings. I recommend DMT & celery juicing. If you also have MS or are close to someone (parent, spouse, etc) with MS, please ❤️ and comment. I want to hear your story! Let’s follow & support each other! Please ❤️ and share.
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73 Comments
queenposhnb
queenposhnb Poshmark PFF’s List #1 👁@jfoxy19 👁@grammyg22 👁@bambooshay 👁@square_deals 👁@littleredpanda 👁@emmykitty 👁@suzcat12 👁@bandgscloset 👁@jamika19 👁@kimmysue1979 👁@mbsage37 👁@cherrypickin 👁@abaumgart 👁@cristielee1 👁@chanipye 👁@blessedwifey 👁@sweetspell62 🌹🌹🌹DNC🌹🌹🌹
Sep 12Reply
queenposhnb
queenposhnb POSHMARK PFF’s List #2 👁@zepigrl 👁@jovigraham 👁@fkelly1 👁@varvara6 👁@believer6 👁@terbearco 👁@gyspymama84 👁@msvermonster 👁@yorkypyne 👁@princepessa 👁@zoe402 👁@jaolsen61 👁@faithoverfear07 👁@tkrose32 👁@valine 👁@catlady1952 👁@peanutbutterina 🌹🌹🌹DNC🌹🌹🌹
Sep 12Reply
queenposhnb
queenposhnb POSTMARK PFF’s List #3 👁@imrescued 👁@jessicad7 👁@greekolive901 👁@chazsboutique 👁@twisterjen3080 👁@believer13 👁@momisnuttz 👁@alhopki 🌹🌹🌹DNC🌹🌹🌹
Sep 12Reply
queenposhnb
queenposhnb Today, I was scheduled to participate in BIKE MS. Due to COVID 🙁, we have a virtual WALK MS PARTY. BTW- please note EVERYONE! Antibacterial gel/hand sanitizer is not to be sold on POSHMARK. I learned the hard way...... Kinda got my feelings hurt. I had no idea..... especially since others sell things that are liquid and contain ETOH. I asked a friend and changed my listing to not for sale- and PM still flagged me. So be aware of what you can and can not sale on PM.
Sep 12Reply
queenposhnb
queenposhnb LESSON HAS BEEN LEARNED.
Sep 12Reply
queenposhnb
queenposhnb I have to get my bi-annual MRI today 🙃 Prayers for a good MRI with no changes. As we all do, anxiety is par for the course with MS. It sux.
Sep 18Reply
queenposhnb
queenposhnb So I quit smoking in December 2014 and started celery juicing every day. Since this major life change, I have no day fatigue (was formerly my worst symptom), a reduce in cognitive issues (less ADD and memory issues), a decrease in depression, weight loss, a decrease in heat intolerance..... so many things have changed for the better.
Oct 25Reply
queenposhnb
queenposhnb My annual MRI came back no new lesions or activity, no regrowth for the tumor and my neuro says I am doing very well. I still have some leg spasms at night. QUIT SMOKING!!!
Oct 25Reply
queenposhnb
queenposhnb I quit smoking in Dec 2019/ not 2014.
Oct 25Reply
coachandtrunk
coachandtrunk @queenposhnb Lori thank you for sharing your story with us, that's very brave and thoughtful. Many have hear of MS but don't know what it's like to live with it everyday. My sister in-law was diagnosed 2012. Heat is a big issue for her, it effects her muscle control. I'm going to pass on celery juicing & pray she gets relief. God bless you and I hope you continue to get good news from future MRI's and remission, Sharon💗
Oct 25Reply
queenposhnb
queenposhnb @coachandtrunk Thank you Sharon. Celery juicing sounds disgusting, but after extensive research, it adds in many medical issues. Read up in the “Medical Medium”.
Oct 25Reply
coachandtrunk
coachandtrunk @queenposhnb I'll do that. Maybe it'll help with my Lupus, that would be great too.
Oct 25Reply
queenposhnb
queenposhnb I educate others about MS- “the invisible disease”. It does not define me and I ha e found a way to make it better. I quit smoking and I drink celery. I try to stay positive daily.
Oct 26Reply
queenposhnb
queenposhnb @tracy031770 What is your condition? I assume it is an autoimmune disease too? I do PM, I work full time as a social worker and I am a wife and have a 6 yo son.
Oct 26Reply
jojofromnc
jojofromnc @queenposhnb diagnosed in 2011. I have my good and bad days. My issue is mostly balance. But hey i manage a company of 65 people and don’t let the MS get in my way. If FDR can run a country from a wheelchair, we certainly can still lead! Good luck with your businesses as well!
Oct 28Reply
queenposhnb
queenposhnb @jojofromnc Hello! Thank you liking this listing. It for education and chat among those of us that have MS or know someone who has MS. I am a social worker, work 40 hrs a week, have a 6 yo son and a fur baby about the equivalent of my son’s age. My symptoms have subsided so much lately. Praying that my positive life changes will keep me in remission. What medication do you take?
Oct 28Reply
jojofromnc
jojofromnc @queenposhnb that’s great! I’ve been on gilenya for awhile and i do fairly well on it. Fingers crossed!
Oct 28Reply
queenposhnb
queenposhnb @jojofromnc Started with Tecfidera (got hives), then went to Aubagio (caused HBP) and have been on generic Copaxone for about 3 years! Have had active lesions pop up here and there but everything has been under control for about a year! Praying it continues to work!
Oct 28Reply
jojofromnc
jojofromnc @queenposhnb i pray for you too! Here’s to continuing to do well!
Oct 28Reply
queenposhnb
queenposhnb @jojofromnc Same here! AND added to my PFF list. We need to stick together. Please post any questions or concerns here!
Oct 28Reply
dianah1234
dianah1234 MS Fighter since 2003. Stay strong and positive! 💕
Nov 08Reply
queenposhnb
queenposhnb @dianah1234 You too! This group is here for us! We need to stick together!
Nov 08Reply
dianah1234
dianah1234 @queenposhnb absolutely!!😊💕
Nov 09Reply
gentry777fam
gentry777fam My little sister passed away, she had MS Love this Post!
Nov 10Reply
queenposhnb
queenposhnb @gentry777fam Sorry for your loss ☹️
Nov 10Reply
dianah1234
dianah1234 @gentry777fam sorry for your loss... we’re all here for you if you need ears & virtual hugs 💕
Nov 12Reply
dianah1234
dianah1234 Hellloooo! How are you doing? You got me interested in celery juicing, so I googled it. There’s soo much info that is overwhelming. So my question to you is how you make and take it? Hope all is well with you and your family ❤️
Nov 12Reply
queenposhnb
queenposhnb @dianah1234 Look up the book: Medical Medium- Celery Juicing. I juice celery very morning- up to 20 oz. and drink it on an empty stomach. Wait 30 minutes before any coffee, breakfast etc. If you hate celery, do not worry. Just get celery that is light in color..... it will be less bitter on your palate. Celery juicing helped me lose weight and got rid of my day fatigue.
Nov 12Reply
dianah1234
dianah1234 @queenposhnb thank you so much. You explain it so much better 😊 it would be great if it helps with the fatigue... and the weight of course
Nov 12Reply
cfreeme
cfreeme Right there with you💗💪🏼Stay strong-each day is a different battle on the inside that can’t necessarily be seen from the outside. You’re a WARRIOR. Don’t forget that. 🥰
Mar 15Reply
shopper919
shopper919 @gentry777fam wanted to offer my condolences about your sister. So sad. 🌹
Dec 29Reply
shopper919
shopper919 Sending heartfelt healing prayers to those with or have family/friends with MS. @queenposhnb G-d bless u. U work F/T, run a posh game and closet, take care of family and home. A family member was just diagnosed. I’m very upset. Will go to Mayo. What is DMT? Heard there’s shot that costs $65k to reverse MS. Have u heard of it? Thank you 🙏 you are amazing!
Dec 29Reply
queenposhnb
queenposhnb @shopper919 Thank you for viewing my post and for the props. It is difficult raising a 7 yo, working FT and living with MS. But I do it. A DMT is a disease modifying treatment- oral, shots or infusions. I believe that Selma Blair (celebrity) got that treatment, but it is like chemo and makes you lose your hair 🤷🏼‍♀️. There are several different forms of MS and I luckily have the kind that does not progress to the inability to walk, complete daily living tasks, etc.
Dec 29Reply
queenposhnb
queenposhnb @shopper919 I am sorry that you had a family member diagnosed. It is not genetic supposedly. Just remember: MS’ers do not function like a normal person does. Stress is our enemy and we require a “charging up period”- like after major stressful events aka the holidays, a major life event, getting a cold, etc. We get cog fog (look it up). I can’t travel for long distances. I dislike it when people tell me I “look great”. People just don’t know. I am an MS WARRIOR. ✌🏼
Dec 29Reply
armoire1chic
armoire1chic @queenposhnb fyi: Niacin supplements, or found naturally in Walnuts, keeps nerve impulses in check, as well as keeping brain functions & the nervous system healthy & much more. A Niacin deficiency causes negative personality changes. Papain in Papaya is a digestive enzyme which keeps protein metabolism in check & helps to reverse MS & autoimmune degenerative syndrome, along with Vitamins A,C,E, Zinc, & Selenium.
Jan 02Reply
armoire1chic
armoire1chic Remember, the potency of seeds & sprouts is more than 10x’s stronger than the fruit/vegetable it comes from, so eat all of it, although spicy! Degeneration & shrinkage of the Pituitary Gland is suspect for contributing to the body’s attacking itself.
Jan 02Reply
queenposhnb
queenposhnb @armoire1chic I am back on Keto, as I have been reading a lot about the de-inflammatory properties it has. So of course seeds, will be a big part of that. I am cut out sugar and that is a big win for me. I also juice celery! I think it tastes good- if you would told me to drink celery a year ago, I would have laughed in your face. I still work FT, I am raising a beautiful boy (really he is pretty) and PM is my hobby. MS does not control me, I am an advocate. ❤️
Jan 02Reply
queenposhnb
queenposhnb @armoire1chic I take Copaxone- DMT which is an injectable, safe medication for MS which is amino acids.
Jan 02Reply
armoire1chic
armoire1chic @queenposhnb I am leery of Keto, but The South Beach Diet is very similar, only not to the extreme point of Ketosis & calls for lean meats. It was developed by a Cardiologist & was not intended to actually be a diet, but to help bring bad blood fat levels down since even the AHA’s diet wasn’t getting his patients there & this trick did it! I’m sorry to learn you have this problem!🙏
Jan 02Reply
armoire1chic
armoire1chic *Lean meats & healthy fats in lower quantities.
Jan 02Reply
queenposhnb
queenposhnb @armoire1chic Getting to the Ketosis point is what you need to put your MS symptoms at bay. Absolutely no carbs- which stinks because I love bread and pasta.
Jan 02Reply
armoire1chic
armoire1chic @queenposhnb Carbohydrate density in foods matters & is worth looking into. For example, carrots have carbs, but since they are not carb-dense, you can have many before it’s carb overload. When compared to bread, it is a big difference because bread is carb dense. A potato has carbs, but much less than bread. Carbs supply glucose for energy levels.
Jan 02Reply
chanipye
chanipye Hey beautiful. I'm in Hospital right now. I believe having a relapse. New symptom. My left calf is stuck in a Charlie Horse. I can't walk only crawl 🥺 My leg is killing me. Say a prayer for me please PFF. I saw your message about the game. I will sign up for now. Hopefully I'll be okay to play. Just wanted you to know.
Feb 24Reply
queenposhnb
queenposhnb @chanipye Prayers my friend 🙏🏻 ❤️ Stay strong warrior!
Feb 24Reply
lj_boutique
lj_boutique Had MS since 2005! Taken so many different treatments, but have been on Ocruvus for almost 4 years! Praying that your MS is always manageable and you are doing well with it now! Sharing your closet, and thank you for sharing this posting! God Bless!💕🙏🏼
Feb 25Reply
queenposhnb
queenposhnb @bestdealsbyleah Thank you for sharing your story and my closet. Much love warrior!
Feb 25Reply
jensposhpit
jensposhpit I have a thyroid condition, but my doctors are sending me to specialists to either rule out or diagnose MS too. I have my 1st appointment in April.
Feb 27Reply
queenposhnb
queenposhnb @jensposhpit Be prepared for MRI’s. What are your symptoms my friend (if I may ask)?
Feb 27Reply
queenposhnb
queenposhnb @jensposhpit MS and autoimmune diseases are popping up more and more frequently. I think it has to do with stress and traumatic experiences. My opinion.
Feb 27Reply
jensposhpit
jensposhpit @queenposhnb I'm used to MRIs from all my back surgery. 🤪 My body is falling apart and I'm only 43. Lol I was diagnosed w/hypothyroidism around 2011. I'm so exhausted all the time. Losing feeling in both hands & that's gotten really bad real fast
Feb 27Reply
queenposhnb
queenposhnb @jensposhpit I am 43 too! I have lead a “rough life” with my body, but I think everyone has some issues starting at 40. 🤷🏼‍♀️ All of my aunts have some kind of autoimmune thing going on, but I am the only one in my family with MS.
Feb 27Reply
jensposhpit
jensposhpit @queenposhnb I've been hard on my body too. Was always a tomboy growing up & had to keep up with the boys to prove a point. Lol My issue started in my early 20s. Once they start, it doesn't stop.
Feb 27Reply
queenposhnb
queenposhnb @jensposhpit How did your appt go?
Apr 06Reply
jensposhpit
jensposhpit @queenposhnb I had to postpone it to June 6th. There's something wrong with my insurance and the co-pay is going to be $172. I need a little time to get that together. Ugh.. it's so frustrating. Thank you for remembering me. 🥰
Apr 06Reply
reesbrown56
reesbrown56 🐈🐶🐈🐶"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty." Albert Einstein 🦌🐅🐎🐑 Praying for this Great Cause....and increasing Sales from Sharing🤑💰 👱‍♀️Jeanne
Apr 07Reply
bloomingmoon
bloomingmoon 🤟🏻🤟🏻🤟🏻 I’m an epilepsy warrior. My father died from MS - Remitting, went down hill extremely fast. He passed when I was 17. 10 years ago this march. 💜💜💜
Apr 30Reply
queenposhnb
queenposhnb I am sorry 😢 to hear that.
Apr 30Reply
chanipye
chanipye Hope you're doing good PFF. 🙏🏽
Jun 15Reply
klevfam
klevfam ❤️ My daughter was diagnosed at age 22. They tried several medications but the had side effects were awful. She wanted to have a baby but had to go off the meds for 6 months.About a year later, she became pregnant and had a beautiful sweet baby girl. However, the MS w/o treatment (for nursing) was advancing. We finally found out about Gilenya that worked very well. She is and has been doing extremely well in full remission now for 7 years!
Jul 04Reply
queenposhnb
queenposhnb @klevfam Really? Is Gilenya a shot or oral med? I need to look for a new one but have to be careful about the risk for PML since I had a brain tumor.
Jul 04Reply
klevfam
klevfam @queenposhnb It’s a once a day pill. The cost is astronomical at $7000/month but she works for USAA and they cover it at 100%! Praise God 🙏❤️🤍💙
Jul 04Reply
queenposhnb
queenposhnb @klevfam Awesome! Most MS pharmaceutical companies help with cost if it is too expensive for you. I work for an insurance company as well and have USAA 😊 have a good night!
Jul 04Reply
klevfam
klevfam @queenposhnb wow! What a small world! Sending my prayers for you 🙏
Jul 05Reply
starwild18235
starwild18235 I was diagnosed with MS in 2015 officially but suspected earlier. Hugs!
Jul 21Reply
starwild18235
starwild18235 @queenposhnb I've been on copaxone 7 years till had a reaction few weeks ago and doctor told me to stop. Seeing neurologist tomorrow.
Jul 21Reply
queenposhnb
queenposhnb @starwild18235 I am in the generic form of Copaxone- Glatiramer. I was doing once a day but now I am 3 times per week. Hope you find a medication that works for you!
Jul 21Reply
starwild18235
starwild18235 @queenposhnb thank you! It worked for many years and no lesions. See what the doctor recommends tomorrow. Nice to talk to someone else with MS. Take care and best wishes. ❤
Jul 21Reply
kayjun_girl
kayjun_girl Hope you’re doing well. I’m having a terrible relapse this month. Sending you positive vibes 🧡🧡🧡🧡
Dec 31Reply
queenposhnb
queenposhnb @kayjun_girl Hey 👋 there sugar. Do you know what caused your relapse? If you have some idea of what triggered it, You may be able to reverse to remission. It may have been a stressful holiday season for you? I will keep you in my thoughts. What does your neuro say? Much love 🧡
Dec 31Reply
kayjun_girl
kayjun_girl @queenposhnb Im thinking a combo of things starting with my insurance denying my infusion 10 months, I worked as a USPS carrier in Louisiana heat, plus yes some definite high stress lately. I’m on my super high dose steroids this week, which actually seem to be making me feel 10 times worse. Seeing my specialist in Houston next week and praying my infusion will go through as planned the week after 🧡
Dec 31Reply
queenposhnb
queenposhnb @kayjun_girl That will do it! Oh my! I hope 🤞🏼 everything going through or you can get on another good DMT. 🧡
Dec 31Reply
kayjun_girl
kayjun_girl @queenposhnb thanks so much!!! 🧡
Dec 31Reply

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queenposhnb

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queenposhnb

@queenposhnb

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