IM IN REMISSION!!ππ
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Update: I DID IT! I GOT IT INTO REMISSION! I dropped 15% of my body weight
I was recently diagnosed with iih last week , it's been a whirlwind of an experience. please be patient with shipping times, I will finally be returning to work soon however it won't be easy.
I am adjusting to my medications and really had a hard time with a spinal tap.
unfortunately this diagnosis and it's medical bills have pushed my husband and I further from our dreams of moving to Michigan's Upper peninsula... all sales are greatly appreciated ππ I'm open to any offers. Anything helps at this point. Please just be a decent human and reasonable.
thanks everyone for listening...
love, D
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caitlinmlang
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12 Comments

cottagewitchco
@pinkgremlinco
Jul 29Reply

cottagewitchco
@mel7star
Jul 29Reply

mikatuhh
Girl! I have intracranial hypertension too! Ik exactly what youβre going through. I was diagnosed last December. The medications do take a lil while to get adjusted to. I could barely eat for months because I just completely lost my appetite on the diuretic meds. They donβt work completely but make the migraines a little more bearable, you can say. Ice on my forehead & neck is a savior for me. Feel free to message me if you ever need someone who gets it:)
Jul 30Reply

cottagewitchco
@mikatuhh omg it's crazy! mine came on all so suddenly. they say it's rare. but I kinda doubt that tbh. reading other's stories has been interesting because 4 some people they've gone like 10 years undiagnosed and doctors didn't quite understand it. it felt like it just hit out of nowhere. I felt like I was finally getting my life back together after having a small PE last summer. it's frustrating because we want to move so bad and I just feel so set back and scared
Jul 30Reply

cottagewitchco
@mikatuhh I appreciate your kindness and support ππ I'm so sorry you go through this too.
Jul 30Reply

mikatuhh
i got diagnosed with a rare kidney disease called nephrotic syndrome in 2021 which caused a thing called PRES on my brain. Iβm in remission now but in 2023 I went in for a normal eye exam & they looked at my eye & then i got sent to the hospital because my optic nerves were swollen. Did the spinal tap & MRI & the pressure was high & i got the diagnosis then. they said that the PRES most likely caused the IIH. I hope you have a very quick and easy adjustment & i wish the best for youπ€
Jul 30Reply

cottagewitchco
@mikatuhh that's nuts! I'm glad you're in remission now atleast and I hope it stays that way 4 a long long long timeπ«Ά
Jul 30Reply

kelseysboutique
Thank you for sharing your story and bravery.β€ although nowhere near your own diagnosis and what experiences you've gone through, I am a chronic pain sufferer and understand the hardships that come with ongoing medical conditions and stresses. I think sharing this is extremely brave and transparent and reaches many people who may be struggling with similar situations, as it does for me.π
Nov 17Reply

kelseysboutique
Sending lots of love, prayers, strength and hope your way and I hope that the poshmark community treats you with kindness and support!ππ
Nov 17Reply

cottagewitchco
@kelseysboutique πππ
Nov 18Reply

ravishingrabbit
@cottagewitchco Sending tons of hugs & love your way. πππ
Feb 24Reply

cottagewitchco
@ravishingrabbit β€οΈ
Feb 24Reply
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