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Chiari Malformation Brain Surgery Survivor Each 1⃣ Teach 1⃣ :
Chiari is a rare condition in which brain tissue extends into the spinal canal. The herniation which puts pressure on the brain stem can cause many permanent, uncontrollable, debilitating & life changing symptoms.
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25 Comments
aldeth9791
hi there from another Chiari warrior!!
chiari_closet
@aldeth9791 Oh my gosh 💜💜 Hey there! I hope you are well!✌🌻💜
chiwaddles
hope you are doing well. I too suffer from an incurable brain condition. The daily ups and downs can be hectic but providing yourself with empathy for a little light each day. take care and happy poshing!🌺🤝🌼🌟🌈🍀
chiari_closet
@chiwaddles thank you 😊 I hope you are well also 💜 You are absolutely right, the ups & downs are very trying! (had a bad flare, I'm sorry it took days to respond!) ❤💕😘
chiwaddles
@chiari_closet no worries hun. hoping the best for you!🌻
chiari_closet
@chiwaddles 😊 Same to you!😘
tpolasek14
I also have Chiari!
chiari_closet
@tpolasek14 💜 Hugs fellow Chiarian 🤗 I hope you are well!🌻
tpolasek14
@chiari_closet doing as well as we can! 😊🙃 let me know if you ever find any cool chiari malformation items.
tpolasek14
@chiari_closet hope you are well! 😊
chiari_closet
@tpolasek14 Thanks hun 😘 I sure will!
cynsational101
Hello there. My 3 children also suffer from a debilitating brain condition Intracranial Hypertension & other illnesses too. My heart goes out to you being a chronic pain WARRIOR too! Keep on keeping on & being an inspiration to others! ❤️😘🙏
chiari_closet
@cynsational101 Awe Bless their hearts! I'm so sorry your babies have to deal with that 💙 praying for all the strength you & your babies need Momma 💜💜😘
Thanks for the love ❤🌻😘
cynsational101
@chiari_closet Aww Tysm ! 🥰🙏
Take Care & Stay Safe ❤️
Wishing you all the best!!
chiari_closet
@cynsational101 💜💜💜🌻😘
tagalonggal
Hi! One of my best friends has syringomyelia. No herniation of brain stem yet. I have scleroderma and psoriatic arthritis, so we are chronic illness warriors together. Happy to support a fellow spoonie and warrior!!! I will be sharing your closet daily.
chiari_closet
Hey there @tagalonggal Happy to meet a fellow spoonie warrior 😊💜 I am sorry for the pain you & your friend endure tho 😕 it can be so exhausting. Thank you for the shares, I really appreciate that, and will do the same for you 🌻😘
Happy Poshing! 💚💛💜
dakotaflipz
I just stumbled across your closet by searching Chiari looking for Chiari Malformation gear. My 12 year old daughter was diagnosed with this on March 3, 2021. We see the neosurgeon April 5th. My life has pretty much been crazy since. Nice to meet you💜
chiari_closet
@lovehas4paws Nice to meet you as well 💜 Prayers, love & strength for the journey you all are on now 💜💕🌻
dakotaflipz
@chiari_closet Thank you 🙏💜🐾😘
mbncreations
Hi! Both of my daughters and I also have Chiari malformation. Hope you are doing well!
chiari_closet
@mbncreations 💜 I hope you three are doing well also, Thanks! 😘
trinketnthreads
Hello beautiful!! I also have IH..💚💙 Ihope you are doing well. I accidentally stumbled across your closet tonight, just doing some following. But I see there are alot of other warriors on here also after reading some of your comments. How awesome! Take care.. xxx💜
chiari_closet
Thanks for stopping by @trinketnthreads 🌻💟 you take care as well! 😘💜💕
mylovejewelry
@chiari_closet Hi! Your closet is great. I would like to share your listings to my friends. Mine also looks fabulous! :)
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