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ambaldwin88 and 28 others like this

70 Comments

vmbonthecoast OMG I have this and it has moved to the point where I had to leave my Hospice nursing career. It does suck but I take it day by day and work on staying positive.

Feb 14Reply

justjessi @vmbonthecoast all we can do is take each day as it comes. 💋#Xojessi

Feb 14Reply

cherryblast i just wish there was something i that worked for the pain not to mention the fatigue. there are days i can barely get up

Mar 10Reply

cherryblast @justjessi

Mar 10Reply

justjessi @cherryblast yes! It is awful!!!! Been over 10 years since I was finally diagnosed. Hope you can find some relief. 💋#Xojessi

Mar 12Reply

cherryblast @justjessi jessi, I as well, hope you are finding relief from this horrible and painful disease. I have to go on a literally day by day to say how I am feeling. Good luck. Let me know if you see or want anything in my closet. You can have 50% off!

Mar 12Reply

justjessi @cherryblast you are so sweet! Thanks! When I get some sales, I will def come shopping! I am just now trying to recoop from a 3 day flare that knocked me on my ass! I hate that helpless feeling of WANTING soooooooo badly to just get up to do something but our bodies hold us captive!!!!! It is awful! Luckily, at 41, I finally have a partner in my life that TOTALLY gets it when I am simply worthless & cannot function. That is a God send! Here's to feeling well! If you ever need someone to "get it"....shoot me a note! 💋#Xojessi

Mar 15Reply

justjessi @morningdove1961 girl, it so does suck! However, knowing that we aren't alone & others DO understand, does bring relief to our souls! Prayers your way, as well! 💋#xojessi

Mar 29Reply

floridafashion1 Going to tell you an experimental treatment I had done at the spine injury clinic in Portland Maine....and it worked I went every six weeks and insurance covered it. Nothing else has ever worked. My mother had suffered and so did I. its called lidocane infusion therapy so its just that simple they put lidocane through a slow drip iv for around an hour. Please check into it. 6 months into treatment I ran a mothers day 5k race with my kids and use to just lay on couch and cry from pain. Some moments I did not think I could live they rest of my life that way. I have not had a treatment in over a year adder one year of treatments. Unexplainable but fight for this its your right to be pain free. All my well wishes and big hugs and support coming from your posh sister sherri

Apr 22Reply

justjessi @floridafashion1 OMG‼️‼️‼️ I cannot express "thank you" enough‼️‼️‼️ Tears......😢😢😢😢😢 I will be making an apt with my Dr tomorrow to discuss this. Thank you‼️ 💋#xojessi

Apr 22Reply

floridafashion1 Im here anytime you have questions or if you just need to talk. If your doctor has never heard of this dont get discouraged its out there and you can have him check pain treatment centers but esp spine injury treatments. Let me know how its going I will be praying for you. sherri

Apr 23Reply

floridafashion1 maybe even print out what I wrote to you and give it to him so he knows it worked for someone else.

Apr 23Reply

justjessi @floridafashion1 I am going to look it up so I can give the info to my Dr. Thank you so much for caring enough to share this with me. Fybro has certainly given me a "run for my money"‼️‼️ coupled with bi-polar & a laundry list if other crap....it has been a long haul to just keep putting one foot on the floor in the mornjng‼️ that feeling of being trapped in out own bodies is so frustrating & discouraging. I hate laying in bed, curled up in pain when inside my head all I want to do is get up & DO something‼️ my kids have kept me alive..... This country NEEDS to focus on these debilitating conditions so we all don't suffer in silence, with everyone looking at us like we are lazy. Don't even get me started on how out society "deals" with mental health‼️‼️‼️ 💋#xojessi

Apr 26Reply

justjessi @jakeamom12 see above. 💜💜 💋#xojessi

Apr 27Reply

kathrynswraps #fibrosucks. I have it too and I hate it everyday. I have a website I post stuff on if u r ever interested let me know and I'll give u the address. Hope u r having a pain free day and gentle hugs... Great closet btw.. I had to share a lot of it cause it's so nice..

May 02Reply

cre8trix God, i have this and constant headaches, stomach pain and a host of other probs, too, i know what u mean about being unable to do anything :( that lidocaine drip sounds awesome. Hope u r feeling better!

May 03Reply

leetsfarrell I agree. i have a genetic disorder called hypermobility syndrome. finally diagnosed after 28 years of pain management. not a well known disorder here in the states but it is in the UK. Most doctors have never heard of it, that's the frustrating part. stay well and try your best to stay pain free. And happy poshing

Jun 11Reply

justjessi @leetsfarrell thank you for the post. I looked up that condition & will ask my Drs about it. Nothing is "simple" or "cut & dry" with constant pain. Unless you LIVE it, as we do, it is impossible to know what all it effects for us. I appreciate the info & compassion. 💋 #xojessi

Jun 12Reply

leetsfarrell Thanks for asking your doctors. With Obama care I am limited to the doctors I can go to, even with anthem blue cross and Ppo insurance. It's insane. I'm looking into disability and not one doctor will take responsibility to help me out. Currently, my feet, shoulders and back are killing me. And I have a sleep disorder which hasn't been diagnosed. I had a sleep study completed, nothing odd and doctor wanted to do more testing. Then he was convicted of sexual misconduct. My psychiatrist died. Went to another one and he was useless. My pain mgmt almost opted out of obamacare but found out they are the only pain mgmt in the system here in Palm Springs area (coachella valley). Thank God they changed their mind. My GP isn't in obamacare and he knows about HMS but I can't afford to go to him without insurance. It's so frustrating

Jun 13Reply

justjessi @leetsfarrell I am been fighting for my disability since '07! When it does go thru, it will be life changing. I totally understand the BS w/ finding the right Drs AND having it covered by insurance. Chiro was HELPING some, but, of course, not covered! I am on Medicade.....if not, just ONE of my meds is $1700/month!!! Don't even get me started on the damn pharmaceutical companies that are robbing us all blind....or CRAZY, as the case may be‼️😜😜😜😜😜😜 it is so frustrating. Keep at it, girl. Getting a lawyer that does disability can really be a big help. Most here in NY will only take their money from your original settlement, so just getting that in place can be worth the chunk they take. I feel for ya, love. Let me know if I can help in any way. I am always here to lend an ear.....as long as I am not curled up in the fetal position trying to get through a flair up‼️ UGH‼️ SUX‼️💋💋💋💋

Jun 14Reply

jenniferf76 I know fibro all too well also! I suffer frim it and was diagnosed in my mid 20's but wasnt given anything for it until last year, I am now 38. I have a whole slew of other chronic pain health issues, been through so much testing between my neurologist rheumatologist and neurosurgeon. Have all the symptoms of ms but tests show otherwise. Have symptoms of autoimmune disorders, and i have neuropathy as well. Went through 2 surgeries, several injections in my back and neck plus a rhizotomy in my back on L4/L5 all within ladt six months of last year. I also suffer from debilitating migraines and somedays walk witg a cane. Hoping i dont end up in a wheelchair! ♿ <-me...wheeee..sorry sometimes i need to joke about myself to keep sane...my legs cramp up and my knees swell up from osteoarthritis and a possible autoimmune disorder ( getting even more extensive testing done for lupus, lyme disease & whatever else my doc put down). I can also relate as far as the bipolar. I dont suffer from it but my son did, diagnosed at age 4. He recently committed suicide in April this yr. He was suffering from severe schizophrenia. You can read my intro in my closest. Even with all the chronic pain i go through, nothing hurts more than the loss of my son. He was only 19.....Well i am so glad that others know what its like to live with the "unseen" diability of fibro. Most people who dont have it dont understand and they are ignorant. If you ever need to talk or vent you can message me on fb...look for Jennifer Henson-Floyd or just email me at jmh 11576@yahoo.com ...I may not always answer right away but i will eventually....take care of yourself, try to think positive(I tell myself that there are others who are worse off), and always hug your kids and tell them you love them..🌹🌼🌺💖💞💟💚💗💕😘

Jun 20Reply

abstractdreams Check out my Fibro Girl listing & feel free to stop by to vent, support or just to reassure yourself that you're not alone.👍💕

Jul 03Reply

justjessi @linmp1031 I didn't see your Fybro listing. Plz tag me in it. Thx! 💋 #xojessi

Jul 03Reply

abstractdreams I'll do ir...gimme a sec.💋

Jul 03Reply

eponinemonet229 I feel ya...i have systemic lupus, rheumatoid arthritis, and fibro...and it all sucks. Im in constant pain. Im a cardiac nurse. I work

Jul 11Reply

eponinemonet229 Oops..sorry didnt fimish my sentence ana accidently hit post. I work with transplant patients. I love my job. It gets harder and harder with my diseases...just too bullheaded to get on disability. Funny thing is I feel better at work..its when i get home the pain goes through the roof. I hurt at work but at least work helps distract from some of the pain. Prayers go out for you. Its hard to deal with...the ignorance of other ppl makes it even harder. Im blessed to have good doctors and by the grace of God go I. I take a lot of meds and supplements and dietary changes have helped a lot. Certain things really flare it up bad. Artificial sweeteners are totally toxic to me...aspartame is one of the worst...makes me very sick. If you ever need to talk..im here. Take care :)

Jul 11Reply

justjessi @eponinemonet229 thx, love! Nice to know we at least have strength in numbers‼️‼️ 💋 #xojessi

Jul 12Reply

justjessi @bettie_kcd oh, love! I feel ya‼️💜💜💜 I hope you can find some relief. Please know that your daughter will learn that mommy does the best you can. It can be so overwhelming but know you aren't alone. I am here if you need to talk. 💋 #justjessi

Jul 22Reply

justjessi @bettie_kcd email will work ok once I get my new phone today or tomorrow. Nyjessi (AT) gmail (DOT) (COM) Insert proper signs for actual email.....😜😜😜. Otherwise texting is generally best for me. If you want to email me ur number I will text you when I get the new phone. It is essential to have a good support system. Hope you have a restful day. Prayers & peace sent your way👏👏👏👏👏👏💋 #justjessi

Jul 22Reply

susu49 I will add my name to the migraine-cursed people! I have had them over 40 years!! The only relief I get is a Sumatriptan Injection that I deliver to myself!

Aug 08Reply

justjessi @susu49 UGH‼️ My heart & prayers are with you, love‼️ At least it is FINALLY coming to the forefront & NOT a "dumping ground" diagnosis. It sucks. We hurt. STOP judging us by the "you don't look sick...." mentality. I once replied, "Well, that's ironic because you don't LOOK ignorant, either‼️" 😳😳😳 Here's to less-pain days, love‼️💜💜💜 💋 #xojessi

Aug 08Reply

samoura 💯% sucks, my sister has it and she is a single mom raising three boys on her own and one of her sons is autistic 😢

Oct 30Reply

royalliving You are a beacon of light to others. Speaking up is helpful to others like us. Stay positive and shine! It can be hard but, it is so important to make a positive out of this. Hope you are doing well.

Dec 01Reply

wildkatt07 This sucks big ones!! I hate it! Im miserable all the time..summer is best ..but Im in Oregon and it rains around 90% of the year..so its really hard to be positive! ..I have 7 screwed up discs that make it even worse..Ughh I wish there was something that would make it all go away...I would most Def share with all the ladies who suffer from this..:)

Dec 26Reply

greenshoes0 I'm on some new medications that together are working pretty well. I was miserable all the time. Now, I like having something to leave the house for a lot of days. I also feel a bit more feisty, which is really new for me.

Dec 26Reply

justjessi @greenshoes0 glad to hear. It is a horribly misunderstood condition. 💋 #Xojessi

Dec 27Reply

justjessi @wildkatt07 Agreed!!! I am in Finger Lakes Region of Western NY. This is a lot of why I am taking a "Posh Timeout" right now ‼️‼️ 💋 #xojessi

Dec 27Reply

greenshoes0 I've suffered with it for over 40 years. I had to give up my career when I was in my 30's and I have never been the same. It was only about a year ago that a doctor (rheumatologist) finally combined the medications and it helped. I'm not sure that anything will cure fibromyalgia. I'm just glad I'm getting some relief. I feel like a different person when I feel like I can get out. I started to question my sanity. I convinced myself I was agoraphobic and could leave the house trying to will the pain away. It's amazing what you put yourself through every time you don't feel like doing something. All the people around me tell me they understand, but when push comes to shove, they blame me...I hate this illness.

Dec 27Reply

justjessi @greenshoes0 it imprisons us‼️

Dec 27Reply

lillianfairy I have fibromyalgia also . Knowing that you have the same as me we both know how hard it is daily . Soft hug xo 🌟🎶🎶🎶🌟

Jan 01Reply

stacyesd Awwww I'm soooo sympathetic! I have similar symptoms from unrelated disease and feel your pain my dear~ you are in my prayers!! 🙋💖💕

Feb 16Reply

aalterio @justjessi omg girl I am so sorry.. I'm pregnant right now and can't take my meds and it's miserable!

Mar 06Reply

jennifernora32 Yes love It most certainly does. Gentle Hugs to All Of You here.

Mar 23Reply

charhope7 @floridafashion1 wow!I jst clicked on this&saw ur comment!Im going to ck w/the VA.If they will try this treatmnt.Im a Veteran&its so difficult.I hv Fibromyalgia and lupus.so im always n pain and its hard with 4 kids!Especially my 6 1/2 yr old and 2 1/2 yr old b/c they Are so young.Much love to all you ladies who suffer from these Invisible almost unknown diseases.Its so difficult...esp when people dont understand.its hard to even get enough energy to post pix while watching my toddler all day.

Nov 19Reply

charhope7 @leetsfarrell i have also been diagnosed with hyoermobilty.along w/fibro &Lupus.they say the Hypermobility its from being so flexible,our bodies can go in so many directions.it does something to our mu scles

Nov 19Reply

floridafashion1 @charhope7 I really do understand and so sorry you have to go through this ♥ the treatment worked. I hope you can find a doctor that will do it. Take care hugs coming your way! Sherri

Nov 19Reply

charhope7 @floridafashion1 thanks so much and same to you. Take good care of yourself

Nov 19Reply

flutter_buys I'm sorry to hear you have Fibro as well!! It is a horrible illness!! I know what you go through. Gentle hugs my sister. 💞

Nov 20Reply

justjessi @kcford24 thanks, love 💜💜💜💜 💋 #xojessi

Nov 20Reply

yoyojody I miss you! How are you? Hope your thanksgiving was wonderful!!!! And hope you are feeling great!!!!!

Nov 30Reply

toryshop @Unimaginable I'm so sorry! My Mother has suffered for many many years! Medications only help a little!! God Bless @toryshop💞🙏🏼

Dec 03Reply

toryshop @justjessi Jessi I sent the message above but tagged it incorrectly/I just wanted to tell you/I'm so very sorry you suffer w this terrible illness/My Mom has it as well/ it's very debilitating! I'm so sorry💞! @toryshop💞

Dec 03Reply

jillse I feel your pain 😢 I have been researching everything on the internet and I came across Ashley Black check into her, I ordered her product and tried it for two days and I have already seen a difference.... Today I want to move 😀 not the norm for me! Doctors, procedures, pills for 15 years is enough. I will fight Fybro & I will win!

Dec 08Reply

jillse All of these comments uggh!! I can relate and girls I know the pain.. I haven't tried the lido drip, I'm uninsured and paying out $900 a month in meds & doctor has put me in a huge financial hole. I want out!! Pain has taken away my life and I can no longer take it laying down (literally) Fight ladies Fight!! We all deserve to free of this prison called "Our Bodies".. Life is too short ❤

Dec 08Reply

justjessi @jillse Thanks for sharing. Googling that now!!! 💋 #Xojessi

Dec 09Reply

justjessi @toryshop thanks, love!!! 💋 #Xojessi

Dec 09Reply

jillse @justjessi 💟 I recommend watching her videos and check out the chart she has, it blew me away! XO

Dec 09Reply

chiaandgeorge @justjessi wishing Santa brings you relief for Christmas! :)

Dec 10Reply

clothesnjewlry I've been having the fibro flare from hell., I have no energy to do anything, everything hurts.. It's awful. 💜💜💜

Mar 07Reply

nia1113 @justjessi You are definitely NOT alone! 💝 At least there is such an awesome support system here on Poshmark, and many of us know first hand what living with fibromyalgia feels like. 🌼🌹🌼 Wishing you relief from pain (and numerous other symptoms), good friends to talk with and offer support, laughter, gentle hugs, quality sleep at night and beauty surrounding you all your days 💝🌹💝 Be blessed, 🌷Luv, Nia XOXOXO

Mar 20Reply

clothesnjewlry @justjessi - I'm on clonidine pills for fibro.. They are made for high blood pressure, but there was a study done showing it helped some with Fibro- it definitely takes the edge off a lot of the time.. It doesn't help the crazy flares, but has significantly improved my daily fibro pain. I already deal with 24/7 bladder pain, so it helps. ❤️

Apr 01Reply

spoollidesigns Hi:) so sorry :) idk if this works for you but it worked for my sister - d-ribose helped with the fatigue:()

Oct 24Reply

freepeopleluva @justjessi I totally get it too ladies ! I have rheumatoid disease ( formerly known as rheumatoid arthritis) which is also an autoimmune disease AND fibro .. to top it off I'm a hairstylist and I when I'm in a bad flair up my hands are so swollen I can't even fit my fingers through the holes in the scissor the pain is gruesome 😩we def have a sisterhood it's unfortunate it has to be this kind but at least I know u guys get it 🙏

May 30Reply

alycat67 Hi Ladies! I grew up with my mother bedridden in pain and unable to work full time or drive from the pain until we went to Mayo Clinic and they diagnosed her with the then unheard of fibromyalgia. My mom is finally able to live a normal life because the doctors at Mayo and in Chicago where she lives recommended Complimentary and Alternative Medicine (CAM) and she goes to acupuncture every 4 weeks.

Jul 14Reply

alycat67 She is terribly woozy and feels drunk after her treatments, but the effects are worth it for her and as long as she goes at least every four weeks her pain is managed to the point where she is off of her meds. I just wanted to share my mom's story as many insurances now cover acupuncture and recognise it as an effective treatment. I am so sorry for you all.. sending hugs.

Jul 14Reply